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Direct linkOlivia Boorom; Heather Fielding-Gebhardt; Shelley Bredin-Oja; Kandace Fleming; Rebecca E. Swinburne Romine; Nancy Brady – American Journal on Intellectual and Developmental Disabilities, 2024
Individuals with fragile X syndrome (FXS) and their parents have a range of experiences navigating the crucial transition period between adolescence and adulthood. Semi structured interviews of 47 mothers of adolescents with FXS (mean child age = 15.89 years) were analyzed to identify mothers' changing expectations during the adolescent period and…
Descriptors: Adolescents, Genetic Disorders, Intellectual Disability, Congenital Impairments
