The management of human fetal and embryological collections presents an ethical challenge that can be explored from different perspectives, particularly when considering informed consent. The "micro ethics" level focuses on parties engaged in giving and receiving human tissue while the "macro ethics" level focusses on the…

Involving children as stakeholders and including their voices in updating the Australian Early Years Learning Framework (for children birth to age 5) was a focus of this project design. The design was grounded in participatory approaches with a children's rights perspective, as the team prioritised seeking children's views and encouraging their…

The term "human fetal and embryological collections" refers to repositories or archives that house remains of human fetuses and embryos. Most of these remains have been obtained without informed consent from the next of kin, thus reflecting a time in history where this may have been acceptable. Previous quantitative studies seeking…

Notions of consent, including assent and dissent, are paramount ethical considerations in human research, but have different connotations in research involving young children (aged 3 to 8). While discussion surrounding consent in the early childhood literature has progressed from paternalistic views surrounding the need to protect the child, to…

This article explores whether secondary school English teachers can contribute to consent education in Australia. A scoping study involved reviewing research on consent education, examining both commonly taught and contemporary adolescent literature for themes of sexual consent, and conducting focus groups with English teachers. The textual…

Historically, legislature has been utilized to facilitate appropriate use of cadavers in the anatomical sciences. However, cadaver acquisition and use have also been guided by ethically appropriate and morally acceptable principles. Various global and regional frameworks of "ethical practice" guide body donation, including the use of…

Background: Historically the voices of people with intellectual disability have been occluded by barriers imposed by research practice. More recently, adaptive research approaches have been proposed to enhance the inclusion of people with intellectual disability in qualitative research. Method: This article presents an adaptive interviewing…

Participatory, rights-based methodologies in childhood studies have explored conditions that realise children's rights to participation. One avenue of investigation has been to explore assent procedures that respect children's rights to make informed decisions about participation. Less attention has been directed towards the ways in which children…

There is emerging evidence that young people have a good understanding of consent as a concept, but this does not align with real world practices. The perspectives of young people on the complexities of enacting consent are lacking, as are their views on the role of sex and relationships education. This study explored the topic of consent with 18…

Adolescent populations have become increasingly accessible through online data collection methods. Online surveys are advantageous in recruiting adolescent participants and can be designed for adolescents to provide informed consent without the requirement of parental consent. This study sampled 338 Australian adolescents to participate in a low…

This research explored how young children's research participation can be enhanced when an interactive narrative approach is embedded within research to enhance children's consent to participation and their understanding of the research process. The context for this research was a 1-h, science outreach programme delivered into Australian…

The Convention on the Rights of the Child foregrounds the right to participate. Contributing to decision-making on matters concerning children's lives is fundamental to rights education. This paper discusses ethical and methodological considerations of children's rights-based epistemology, arguing that children are competent to reflect upon and…

'Vulnerability' is a key concept used to understand the ethical implications of conducting refugee-focused research. This case study illustrates the need to follow Luna's (2009) call for a shift from a 'labels' to a 'layers' approach to vulnerability by analysing how two university ethics committees responded to issues of informed consent in two…

This article presents the findings of a systematic qualitative analysis of research in the ethics of digital trace data use in learning and education. From the resulting analysis of 77 peer-reviewed studies, we (1) map the characteristics of research by study type, academic community, institutional setting, and national context; (2) identify the…

Considerations for conducting ethical research with human participants in languages other than English are addressed to some extent in regulatory and guiding statements for researchers, but in ways that are minimal or vague. In this article, I examine guiding documents for research ethics from four countries: the UK, Canada, Australia and the USA,…