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Operationalisation of Self-Determination of Persons with Profound Intellectual and Multiple Disabilities: A Delphi Study
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Nijs, S.; Zijlmans, M.; Schuengel, C.; Embregts, P. J. C. M. – Journal of Intellectual & Developmental Disability, 2023
Background: The high support needs of persons with profound intellectual and multiple disabilities hamper their possibilities for self-determination. To support their self-determination understanding of what this means for this group is necessary. Method: A three-round Delphi procedure with international experts was undertaken to operationalise…
Descriptors: Severe Intellectual Disability, Multiple Disabilities, Self Determination, Individual Characteristics
Dedifferentiation and Difference: People with Profound Intellectual and Multiple Disabilities and the National Disability Insurance Scheme (NDIS)
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King, Michelle – Journal of Intellectual & Developmental Disability, 2020
"Dedifferentiation" represents the merging of the wider "intellectual disability" category with the broader one of "disability" generally; a product of the ascendance of the social model of disability. The recent re-emergence of the significance of impairment and embodiment in disability theory re-establishes the…
Descriptors: Severe Intellectual Disability, Multiple Disabilities, Classification, Decision Making
Increasing Day Service Staff Capacity to Facilitate Positive Relationships with People with Severe Intellectual Disability: Evaluation of a New Intervention Using Multiple Baseline Design
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Johnson, Hilary; Bigby, Christine; Iacono, Teresa; Douglas, Jacinta; Katthagen, Sarah; Bould, Emma – Journal of Intellectual & Developmental Disability, 2017
Background: The social relationships model was developed to describe positive relationships between support staff and people with intellectual disability. We evaluated an educational intervention based on this model. Method: Eighteen staff supporting 5 adult service users with severe or profound intellectual disability from 3 day services received…
Descriptors: Interpersonal Relationship, Caregivers, Adults, Severe Intellectual Disability
A Case Study of an Intentional Friendship between a Volunteer and Adult with Severe Intellectual Disability: "My Life Is a Lot Richer!"
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Bigby, Christine; Craig, Diane – Journal of Intellectual & Developmental Disability, 2017
Background: Friendships between people with and without intellectual disability remain elusive. Little is known about factors that support the development of such friendships and what services can do to promote the likelihood that contact will develop into friendship. Method: A case study approach was used to explore the qualities and development…
Descriptors: Friendship, Volunteers, Adults, Severe Intellectual Disability
Parent-Reported Participation in Children with Moderate-to-Severe Developmental Disabilities: Preliminary Analysis of Associated Factors Using the ICF Framework
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Chien, Chi-Wen; Rodger, Sylvia; Copley, Jodie – International Journal of Disability, Development and Education, 2017
Children with developmental disabilities are at risk for limited participation in everyday activities. This study investigated factors that hindered or facilitated participation in 58 children with moderate-to-severe developmental disabilities who attended special schools. The parents completed surveys on their children's participation,…
Descriptors: Moderate Intellectual Disability, Severe Intellectual Disability, Developmental Disabilities, Pervasive Developmental Disorders
Music Therapy with Young People Who Have Profound Intellectual and Developmental Disability: Four Case Studies Exploring Communication and Engagement within Musical Interactions
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Thompson, Grace A.; McFerran, Katrina Skewes – Journal of Intellectual & Developmental Disability, 2015
Background: The impact of music therapy on the communicative behaviours of young people with profound intellectual and developmental disability has not yet been established. Method: Four adolescents participated in individual music therapy (MT) and toy play sessions with the same therapist in a 6-month period. Sessions were video-recorded and…
Descriptors: Music Therapy, Intervention, Severe Intellectual Disability, Severe Disabilities
Community Participation: Conversations with Parent-Carers of Young Women with Rett Syndrome
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Walker, Ellen M.; Crawford, Frances; Leonard, Helen – Journal of Intellectual & Developmental Disability, 2014
Background: People who have profound intellectual and multiple disabilities face significant challenges to participating in their community and are reported to have few friends. In this paper, the issue of how this is addressed by parent-carers of young women with Rett syndrome is explored. Method: Transcripts of in-depth interviews with 6…
Descriptors: Parents, Genetic Disorders, Daughters, Interpersonal Relationship