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Nicolaidis, Christina; Zhen, Kelly Y.; Lee, Junghee; Raymaker, Dora M.; Kapp, Steven K.; Croen, Lisa A.; Urbanowicz, Anna; Maslak, Joelle; Scharer, Mirah – Autism: The International Journal of Research and Practice, 2021
There is a growing recognition of the need for interventions to improve the healthcare of autistic adults. However, there is a dearth of validated measures to evaluate such interventions. Our objectives were to use a community-based participatory research approach to create an accessible set of patient- and proxy-reported instruments to measure…
Descriptors: Adults, Autism, Pervasive Developmental Disorders, Measures (Individuals)
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Nicolaidis, Christina; Schnider, Gavin; Lee, Junghee; Raymaker, Dora M.; Kapp, Steven K.; Croen, Lisa A.; Urbanowicz, Anna; Maslak, Joelle – Autism: The International Journal of Research and Practice, 2021
Our objective was to develop a measure of healthcare providers' self-efficacy in providing healthcare to autistic adults and to better understand their training needs. We used a community-based participatory research approach with academic researchers, autistic adults, supporters, and healthcare providers. We developed a one-page questionnaire…
Descriptors: Test Construction, Psychometrics, Adults, Autism
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Wetherby, Amy M.; Guthrie, Whitney; Hooker, Jessica L.; Delehanty, Abigail; Day, Taylor N.; Woods, Juliann; Pierce, Karen; Manwaring, Stacy S.; Thurm, Audrey; Ozonoff, Sally; Petkova, Eva; Lord, Catherine – Autism: The International Journal of Research and Practice, 2021
There is a critical need for validated screening tools for autism spectrum disorder in very young children so families can access tailored intervention services as early as possible. Few screeners exist for children between the recommended screening ages of 18-24 months. This study examined the utility of a new autism-specific parent-report…
Descriptors: Autism, Pervasive Developmental Disorders, Screening Tests, Toddlers
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Bacon, Elizabeth C.; Moore, Adrienne; Lee, Quimby; Carter Barnes, Cynthia; Courchesne, Eric; Pierce, Karen – Autism: The International Journal of Research and Practice, 2020
While many children with autism spectrum disorder are now detected at young ages given the rise in screening and general awareness, little is known regarding the prognosis of early detected children. The brain is shaped by experience-dependent mechanisms; thus, what a child pays attention to plays a pivotal role in shaping brain development. Eye…
Descriptors: Autism, Pervasive Developmental Disorders, Eye Movements, Toddlers
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Sterling, Lindsey; Renno, Patricia; Storch, Eric A.; Ehrenreich-May, Jill; Lewin, Adam B.; Arnold, Elysse; Lin, Enjey; Wood, Jeffrey – Autism: The International Journal of Research and Practice, 2015
High rates of anxiety and depression are reported among youth with autism spectrum disorders. These conditions are generally assessed using measures validated for typically developing youth. Few studies have investigated their validity for autism spectrum disorders, which is crucial for accurate assessment and the provision of proper treatment.…
Descriptors: Pervasive Developmental Disorders, Autism, Test Validity, Children