Introduction: There is evidence of a gap between individuals with intellectual and developmental disabilities (IDD) who need treatment for self-injurious behavior (SIB) and those who receive treatment. The purpose of this study (n = 15) was to begin to understand the treatment gap from the perspective of family caregivers. Methods: In…

A qualitative narrative transcendental-phenomenological study was conducted to explore the lived experiences and coping strategies of parents in California raising children with development disorders (DDs). Twenty parents of children with Prader-Willi syndrome, attention deficit hyperactive disorder, or autism spectrum disorder were interviewed to…

Moving Forward Towards Independence, a California-based nonprofit organization founded in 1998 by a group of parents, is a unique residential program where young adults with disabilities learn to enjoy productive, fulfilling and healthy lives within a caring, responsive community made up of fellow residents, trained staff members, parents and…