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Luitwieler, Nicole; Luijkx, Jorien; Stege, Heleen A.; Grootoonk, Anneke; Schans, Cees P.; Putten, Annette A. J.; Waninge, Aly – Journal of Applied Research in Intellectual Disabilities, 2024
Background: For families with adolescent children, the transition to adulthood is usually challenging. This period may be extra demanding for families with a child with profound intellectual and multiple disabilities due to the child's strong and persistent support needs. To support these families during this phase and to facilitate the transition…
Descriptors: Adolescents, Adolescent Development, Family Role, Severe Intellectual Disability
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Perry, Adrienne; Charles, Meisha; Ncube, Busi; Weiss, Jonathan – Journal of Applied Research in Intellectual Disabilities, 2019
Background: School experience is an important part of the life of children with developmental disabilities (DD) and their families. Research suggests that parents of children vary in their level of satisfaction with their child's school, but methodology and results have varied and no consistent reliable measure of school satisfaction exists. This…
Descriptors: Developmental Disabilities, Parent Attitudes, School Effectiveness, Satisfaction
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Perry, Adrienne; Isaacs, Barry – Journal of Applied Research in Intellectual Disabilities, 2015
Background: Family Quality of Life (FQOL) is an important construct in the Intellectual Disabilities field. Several measures exist, including one developed by an international group, the Family Quality of Life Survey-2006 (FQOLS-2006; Brown et al.2006). However, the psychometric properties of this measure have yet to be fully investigated. This…
Descriptors: Quality of Life, Surveys, Intellectual Disability, Family (Sociological Unit)