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COVID-19 Pandemic Experiences of Families in Which a Child/Youth Has Autism and Their Service Providers: Perspectives and Lessons Learned
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David B. Nicholas; Rosslynn T. Zulla; Jill Cielsielski; Lonnie Zwaigenbaum; Olivia Conlon – Journal of Autism and Developmental Disorders, 2025
Purpose: The impacts of the COVID-19 pandemic on autistic children/youth and their families and on service providers are not yet well-understood. This study explored the lived experiences of families with an autistic child and service providers who support them regarding the impacts of the pandemic on service delivery and well-being. Methods: In…
Descriptors: COVID-19, Pandemics, Autism Spectrum Disorders, Experience
A Window into the Use of Post-Diagnostic Services for Autism and Parents' Perspective on the Quality of Early Childhood Services Trajectory in a Canadian Province
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Mélina Rivard; Catherine Mello; Shaneha Patel; Marjorie Morin; Diane Morin – Journal of Autism and Developmental Disorders, 2025
The pathway for post-diagnostic services for autism tends to be complex, heterogeneous, and fraught with delays. This situation has repercussions for families' experience with care systems, the quality of early interventions, and family adjustment. To date, studies of parents' point of view on autism services have predominantly focused on the…
Descriptors: Foreign Countries, Autism Spectrum Disorders, Parents, Students with Disabilities
Teacher-Reported Prevalence of FASD in Kindergarten in Canada: Association with Child Development and Problems at Home
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Pei, Jacqueline; Reid-Westoby, Caroline; Siddiqua, Ayesha; Elshamy, Yomna; Rorem, Devyn; Bennett, Teresa; Birken, Catherine; Coplan, Rob; Duku, Eric; Ferro, Mark A.; Forer, Barry; Georgiades, Stelios; Gorter, Jan Willem; Guhn, Martin; Maguire, Jonathon; Manson, Heather; Santos, Rob; Brownell, Marni; Janus, Magdalena – Journal of Autism and Developmental Disorders, 2021
The prevalence of Fetal Alcohol Spectrum Disorder (FASD) may be underestimated as it can be difficult to diagnose in early childhood possibly reflecting unique developmental trajectories relative to other Neurodevelopmental Disabilities (NDDs). Using data collected via the Early Development Instrument (EDI) between 2010 and 2015, we examined the…
Descriptors: Fetal Alcohol Syndrome, Kindergarten, Young Children, Incidence
A Randomized, Community-Based Feasibility Trial of Modified ESDM for Toddlers with Suspected Autism
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Mirenda, Pat; Colozzo, Paola; Smith, Veronica; Kroc, Ed; Kalynchuk, Karen; Rogers, Sally J.; Ungar, Wendy J. – Journal of Autism and Developmental Disorders, 2022
A randomized feasibility trial of a parent coaching (PC) intervention was conducted across 16 community agencies in a Canadian province. Parents of toddlers with suspected autism were assigned to either a PC group (n = 24) or an enhanced community treatment (ECT) group (n = 25). PC participants received 24 weeks of coaching support from community…
Descriptors: Foreign Countries, Parents, Toddlers, Autism Spectrum Disorders
Comparing the Impact of Differing Preschool Autism Interventions on Parents in Two Canadian Provinces
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D'Entremont, Barbara; Flanagan, Helen E.; Ungar, Wendy J.; Waddell, Charlotte; Garon, Nancy; den Otter, Jeffrey; Leger, Natalie; Vezina, Francine; Smith, Isabel M. – Journal of Autism and Developmental Disorders, 2022
Early Intensive Behavioural Intervention (EIBI) is effective for preschoolers with autism spectrum disorder (ASD). Parental measures are rarely included in EIBI effectiveness studies, yet parental distress and lower self-efficacy are associated with poorer child outcomes. Parents of preschoolers with ASD (N = 485) were surveyed at baseline (T1),…
Descriptors: Early Intervention, Preschool Children, Autism Spectrum Disorders, Outcomes of Treatment
Experience of Autistic Children and Their Families during the Pandemic: From Distress to Coping Strategies
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Jacques, Claudine; Saulnier, Geneviève; Éthier, Agnès; Soulières, Isabelle – Journal of Autism and Developmental Disorders, 2022
To understand the perspectives and needs of autistic children and their families in the context of an emergency, 109 parents and 56 autistic children (5.75-18 years) from Canada completed an online survey about needs, barriers and facilitators to coping with the pandemic. Parents' concerns about their child's development and difficulties managing…
Descriptors: Autism, Pervasive Developmental Disorders, Children, Adolescents
Group Virtual Mindfulness-Based Intervention for Parents of Autistic Adolescents and Adults
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Lunsky, Y.; Albaum, C.; Baskin, A.; Hastings, R. P.; Hutton, S.; Steel, L.; Wang, W.; Weiss, J. – Journal of Autism and Developmental Disorders, 2021
Mindfulness-based approaches have been shown to be effective in improving the mental health of parents of youth and adults with autism and other developmental disabilities, but prior work suggests that geography and caregiving demands can make in-person attendance challenging. The purpose of this study was to evaluate the feasibility,…
Descriptors: Group Therapy, Metacognition, Stress Management, Intervention
Cost-Effectiveness Analysis Comparing Pre-Diagnosis Autism Spectrum Disorder (ASD)-Targeted Intervention with Ontario's Autism Intervention Program
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Penner, Melanie; Rayar, Meera; Bashir, Naazish; Roberts, S. Wendy; Hancock-Howard, Rebecca L.; Coyte, Peter C. – Journal of Autism and Developmental Disorders, 2015
Novel management strategies for autism spectrum disorder (ASD) propose providing interventions before diagnosis. We performed a cost-effectiveness analysis comparing the costs and dependency-free life years (DFLYs) generated by pre-diagnosis intensive Early Start Denver Model (ESDM-I); pre-diagnosis parent-delivered ESDM (ESDM-PD); and the Ontario…
Descriptors: Foreign Countries, Autism, Pervasive Developmental Disorders, Clinical Diagnosis
The Very Early Identification of Autism: Outcome to Age 4 1/2--5
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Eaves, Linda C.; Ho, Helena H. – Journal of Autism and Developmental Disorders, 2004
Forty-nine 2 years olds with social and language characteristics suggestive of autism were identified by community professionals and screening tools, then given a diagnostic assessment and reexamined at age 4 1/2. Agreement between autism clinic and screenings was high, with 88% receiving a diagnosis on the autism spectrum. The children were lower…
Descriptors: Identification, Autism, Social Characteristics, Preschool Children