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Vanderlee, Emma; Aston, Megan; Turner, Karen; McGrath, Patrick; Lach, Lucyna – Journal of Intellectual Disabilities, 2021
Patient-oriented research engages patients and caregivers as partners contributing to all phases of the research process. This was the goal of the Strongest Families Institute Neurodevelopmental research, in Halifax, Nova Scotia, when they included a parent advisory committee, made up of parents and caregivers of children and adolescents with a…
Descriptors: Foreign Countries, Neurological Impairments, Developmental Disabilities, Parent Participation