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'I Cannot Be Missed Yet': A Qualitative Study of Carers of Family Members with an Intellectual Disability about Long-Term Care Planning during the COVID-19 Pandemic
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Boeije, Hennie; Leemrijse, Chantal; Zonneveld, Ellen; Schelven, Femke – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Family carers of people with an intellectual disability sometimes need to transfer their caregiving tasks for example because of illness or ageing. We examined carers' experiences with long-term care planning and the impact of the COVID-19 pandemic on their intentions to engage in long-term planning in the Netherlands. Method:…
Descriptors: Caregivers, Family (Sociological Unit), Intellectual Disability, Health Services
Quality of Health Care According to People with Down Syndrome, Their Parents and Support Staff--A Qualitative Exploration
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van den Driessen Mareeuw, Francine A.; Coppus, Antonia M. W.; Delnoij, Diana M. J.; de Vries, Esther – Journal of Applied Research in Intellectual Disabilities, 2020
Background: People with Down syndrome (PDS) have complex healthcare needs. Little is known about the quality of health care for PDS, let alone how it is appraised by PDS and their caregivers. This study explores the perspectives of PDS, their parents and support staff regarding quality in health care for PDS. Method: The present authors conducted…
Descriptors: Down Syndrome, Health Services, Attitudes, Parent Attitudes
Implementing Community Care for People with Intellectual Disability: The Role of Organizational Characteristics and the Innovation's Attributes
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Nieboer, Anna P.; Pijpers, Vanessa; Strating, Mathilde M. H. – Journal of Applied Research in Intellectual Disabilities, 2011
Background: Community care is the support of people with intellectual disability in everyday life aimed at enhancing their integration into society. This article investigates influences of organizational characteristics on the implementation of community care in the Netherlands. In addition, we explored whether the attributes of community care as…
Descriptors: Mental Retardation, Innovation, Foreign Countries, Community Health Services