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The Roles of Adult Siblings of Individuals with a Profound Intellectual Disability
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Dorsman, Naomi I.; Waninge, Aly; van der Schans, Cees P.; Luijkx, Jorien; Van der Putten, Annette A. J. – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Adult siblings are important in the lives of individuals with profound intellectual disabilities, especially as parents age. However, little is known about the roles they assume. Method: We examined these roles among 58 participants from the Netherlands, who completed an online questionnaire. Results: Most participants (89.7%) assumed…
Descriptors: Foreign Countries, Adults, Siblings, Severe Intellectual Disability
Expectant Parents with Intellectual Disabilities in Child Protection: Risk Factors for Child Safety
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Annick Zijlstra; Tessel Sterenborg; Maroesjka Nieuwenhuijzen; Bram O. Castro – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Newborns of parents with intellectual disabilities face higher risks in their environment for child unsafety, despite parents' good intentions. To help parents prevent unsafe circumstances, a good understanding of the risk factors faced by these parents is needed. Methods: This casefile study examined (1) which risk factors were…
Descriptors: Intellectual Disability, Parents with Disabilities, Pregnancy, Case Records
Homeward Bound: Exploring the Motives of Mothers Who Brought Their Offspring with Intellectual Disabilities Home from Residential Settings during the COVID-19 Pandemic
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Vereijken, Frances R.; Giesbers, Sanne A. H.; Jahoda, Andrew; Embregts, Petri J. C. M. – Journal of Applied Research in Intellectual Disabilities, 2022
Background: At the start of the COVID-19 pandemic, some parents in the Netherlands decided to bring their offspring with intellectual disabilities, who normally live in residential care, home. The present study explored why the mothers decided to bring their offspring home. Method: Interviews were carried out with seven mothers of adults with…
Descriptors: Mothers, Motivation, Adults, Intellectual Disability
Quality of Health Care According to People with Down Syndrome, Their Parents and Support Staff--A Qualitative Exploration
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van den Driessen Mareeuw, Francine A.; Coppus, Antonia M. W.; Delnoij, Diana M. J.; de Vries, Esther – Journal of Applied Research in Intellectual Disabilities, 2020
Background: People with Down syndrome (PDS) have complex healthcare needs. Little is known about the quality of health care for PDS, let alone how it is appraised by PDS and their caregivers. This study explores the perspectives of PDS, their parents and support staff regarding quality in health care for PDS. Method: The present authors conducted…
Descriptors: Down Syndrome, Health Services, Attitudes, Parent Attitudes
Persons with Disabilities as Parents: What Is the Problem?
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Reinders, Hans S. – Journal of Applied Research in Intellectual Disabilities, 2008
Background: This paper discusses the recent debate on parenting by people with intellectual disabilities in the Netherlands. By and large this debate has been dominated by disastrous examples of child abuse and neglect in families where one or both parents have a disability. Feeding on horror stories the media have construed the issue as one of…
Descriptors: Citizenship, Competence, Mental Retardation, Child Rearing
Parents Labelled with Intellectual Disability: Position of the IASSID SIRG on Parents and Parenting with Intellectual Disabilities
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Journal of Applied Research in Intellectual Disabilities, 2008
Background: On August 5th, 2006, the third meeting of the International Association for the Scientific Study of Intellectual Disabilities (IASSID) Special Interest Research Group (SIRG) on Parents and Parenting with Intellectual Disabilities was convened in Maastricht, The Netherlands, coinciding with the 2nd International Congress of…
Descriptors: Interest Research, Mental Retardation, Child Rearing, Position Papers