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Direct linkFemmianne Bredewold; Simon van der Weele – Journal of Intellectual & Developmental Disability, 2025
Background: Researching the perspectives of people with profound intellectual and multiple disabilities (PIMD) presents complexity and uncertainty. Traditional research often prioritises rational, objectivist methods, which may overlook this complexity. Aims: This study aimed to develop methodological cues for researchers studying the perspectives…
Descriptors: Research Methodology, Cues, Family Influence, Caregivers
Nieuwenhuijse, A. M.; Willems, D. L.; van Goudoever, J. B.; Olsman, E. – International Journal of Developmental Disabilities, 2022
Persons with Profound Intellectual and Multiple Disabilities (PIMD) are supported by professional caregivers for a large part of their lives. However, the perspectives of professional caregivers on good or poor Quality of Live (QoL) of persons with PIMD have hardly been explored. To explore the perspective of professional caregivers on QoL of…
Descriptors: Severe Intellectual Disability, Multiple Disabilities, Caregiver Attitudes, Caregivers
Munde, Vera; Vlaskamp, Carla; Ruijssenaars, Wied; Nakken, Han – Education and Training in Autism and Developmental Disabilities, 2011
In the support of individuals with profound intellectual and multiple disabilities (PIMD), assessing the level of alertness is a recurring issue for parents and other direct support persons. Although observations show clear advantages above and beyond other assessment methods, there are problems related to this method as well. Subjectivity of…
Descriptors: Multiple Disabilities, Observation, Severe Disabilities, Cognitive Ability
Schuengel, C.; Sterkenburg, P. S.; Jeczynski, P.; Janssen, C. G. C.; Jongbloed, G. – Journal of Consulting and Clinical Psychology, 2009
In a controlled multiple case design study, the development of a therapeutic relationship and its role in affect regulation were studied in 6 children with visual disabilities, severe intellectual disabilities, severe challenging behavior, and prolonged social deprivation. In the 1st phase, children had sessions with an experimental therapist…
Descriptors: Multiple Disabilities, Mental Retardation, Behavior Modification, Disadvantaged Environment
Petry, K.; Maes, B.; Vlaskamp, C. – Journal of Intellectual Disability Research, 2007
Background: In a recent study, we constructed an item pool that contains items on the quality of life (QOL) and related aspects of support of people with profound multiple disabilities (PMD). In the present study, a panel of experts assessed the content and the structure of this item pool in order to enhance its validity and usefulness. Method: A…
Descriptors: Foreign Countries, Questionnaires, Multiple Disabilities, Quality of Life
