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The Impact of Individuals with Profound Intellectual and Multiple Disabilities on Peer Relationships of Typically Developing Siblings
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Jakub Niedbalski – Journal of Intellectual Disabilities, 2024
Introduction/background: This study aims to determine the impact of a person with profound intellectual and multiple disabilities on peer relationships of their siblings. Methods: Information obtained from typically developing siblings of individuals with profound intellectual and multiple disabilities served as research material for this study.…
Descriptors: Severe Intellectual Disability, Multiple Disabilities, Peer Relationship, Siblings
What Is It Like to Be a Twin of a Person with Profound Intellectual and Multiple Disabilities?
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Jakub Niedbalski – Journal of Intellectual & Developmental Disability, 2025
Background: The aim of this study was to establish the perceived quality of life in twin siblings of individuals with profound intellectual and multiple disabilities (PIMD) living in Poland. Method: Semi-structured interviews were conducted with siblings of people with PMID. The interviews were subjected to thematic analysis according to grounded…
Descriptors: Twins, Quality of Life, Siblings, Severe Intellectual Disability
The Missing Piece. Physiological Data as a Factor for Identifying Emotions of People with Profound Intellectual and Multiple Disabilities
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Torsten Hammann; Jakob Valic; Gašper Slapnicar; Mitja Luštrek – International Journal of Developmental Disabilities, 2024
Introduction: The preferences of people with profound intellectual and multiple disabilities (PIMD) often remain unfulfilled since it stays challenging to decode their idiosyncratic behavior resulting in a negative impact on their quality of life (QoL). Physiological data (i.e. heart rate (variability) and motion data) might be the missing piece…
Descriptors: Psychological Patterns, Intellectual Disability, Comorbidity, Severe Intellectual Disability