Collaborative projects designed to generate research evidence involve knowledge exchange (KE) which hinges on the expectations and practices within the collaborating organisations. Existing literature about academic-police collaborations, and why they break down, has largely focused on different knowledge agendas, research timeframes and…

Concerns have been raised about genomic studies of autism. Most recently, the Spectrum 10 K study was paused due to criticism from the autistic community. This situation raised important questions about how the autistic and autism communities perceive genomic research. The Personal Experiences of Autism and Perceptions of DNA-based-research study…

This paper considers the ethical and practical issues of recruiting for, and administering a quantitative survey with marginalised populations. These issues were identified through a focus group discussion, which consolidated and expanded upon informal conversations held previously by five researchers about their experiences of conducting a…