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Qualitative Methodological Approaches Involving Participants with Intellectual Disabilities: Scoping Review of Literature Exploring Death and Dying
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Marissa A. Diaz; Jerome E. Bickenbach; Carla Sabariego; Renaldo M. Bernard – Journal of Applied Research in Intellectual Disabilities, 2024
Background: A paucity of qualitative research on sensitive topics that focuses on participants with intellectual disabilities leaves their views unexplored. This scoping review mainly aimed to provide an overview of qualitative data collection methods used in research involving participants with intellectual disabilities to explore death and…
Descriptors: Research Methodology, Intellectual Disability, Death, Research
Early Death and Causes of Death of People with Intellectual Disabilities: A Systematic Review
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O'Leary, Lisa; Cooper, Sally-Ann; Hughes-McCormack, Laura – Journal of Applied Research in Intellectual Disabilities, 2018
Background: Death of people with intellectual disabilities is considered to be earlier than for the general population. Methods: Databases were searched for key words on intellectual disabilities and death. Strict inclusion/exclusion criteria were used. Information was extracted from selected papers, tabulated and synthesized. Prospero…
Descriptors: Intellectual Disability, Death, Etiology, Severity (of Disability)
The Experiences of Staff Who Support People with Intellectual Disability on Issues about Death, Dying and Bereavement: A Metasynthesis
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Lord, Ailsa J.; Field, Stephen; Smith, Ian C. – Journal of Applied Research in Intellectual Disabilities, 2017
Background: Historically, people with intellectual disabilities have tended to be excluded from knowing about death, dying and bereavement. Staff in intellectual disability services can play a valuable role in improving understanding of these issues in those they support. This qualitative metasynthesis aimed to understand the experiences of staff…
Descriptors: Adults, Intellectual Disability, Allied Health Personnel, Death
Medical Certificates of Cause of Death for People with Intellectual Disabilities: A Systematic Literature Review
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Dunwoodie Stirton, Fred; Heslop, Pauline – Journal of Applied Research in Intellectual Disabilities, 2018
Background: Mortality studies can help reduce health inequalities by informing public policy through a better understanding of causes of death and comorbidities. Mortality studies often rely on Medical Certificates of Cause of Death (MCCD) for data. Method: A systematic review was undertaken to identify the extent and nature of issues in recording…
Descriptors: Death, Intellectual Disability, Correlation, Mortality Rate
Constipation Management in People with Intellectual Disability: A Systematic Review
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Robertson, Janet; Baines, Susannah; Emerson, Eric; Hatton, Chris – Journal of Applied Research in Intellectual Disabilities, 2018
Background: Constipation can lead to serious health issues and death. This systematic review summarizes international research pertaining to the management of constipation in people with intellectual disability. Method: Studies published from 1990 to 2017 were identified using Medline, Cinahl, PsycINFO, Web of Science, email requests and…
Descriptors: Physiology, Intervention, Drug Therapy, Eating Habits
Intellectual Disabilities and Decision Making at End of Life: A Literature Review
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Kirkendall, Abbie; Linton, Kristen; Farris, Saritha – Journal of Applied Research in Intellectual Disabilities, 2017
Background: Individuals with an intellectual disability are vulnerable to having end-of-life decisions made for them merely due to the presence of a disability. As a result, decisions made by others may not reflect the exact wishes of the individual. Methods: This review examines literature on individuals with an intellectual disability in making…
Descriptors: Intellectual Disability, Decision Making, Death, Literature Reviews
Agency, Social and Healthcare Supports for Adults with Intellectual Disability at the End of Life in Out-of-Home, Non-Institutional Community Residences in Western Nations: A Literature Review
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Moro, Teresa T.; Savage, Teresa A.; Gehlert, Sarah – Journal of Applied Research in Intellectual Disabilities, 2017
Background: The nature and quality of end-of-life care received by adults with intellectual disabilities in out-of-home, non-institutional community agency residences in Western nations is not well understood. Method: A range of databases and search engines were used to locate conceptual, clinical and research articles from relevant peer-reviewed…
Descriptors: Adults, Intellectual Disability, Death, Medical Services