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Direct linkLotte Piekema; Annet ten Brug; Aly Waninge; Annette van der Putten – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Although particular technologies can enhance the quality of life (QoL) of people with profound intellectual and multiple disabilities (we use the term pervasive support needs), their objectives and outcomes are understudied. A systematic literature review was therefore conducted to explore this topic. Method: A search of four databases…
Descriptors: Quality of Life, Disabilities, Intellectual Disability, Assistive Technology
Emiko Tanaka; Kinuko Sugiura; Marja W. Hodes; Maurice A. Feldman – Journal of Applied Research in Intellectual Disabilities, 2025
Background: While there is now considerable research on parenting by persons with intellectual disabilities, most of this research comes from Western countries. A dearth of information exists about families headed by parents with intellectual disabilities from other countries. This paper summarises the state of research and practice in Japan,…
Descriptors: Foreign Countries, Parents with Disabilities, Intellectual Disability, Research
Ting-Yu Chueh; Jia-Hao Wu; Wei-Kang Hung; Cheng-Chen Pan; Chien-Chih Chou; Chung-Ju Huang; Chien-Ting Wu – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Individuals with intellectual disabilities (ID) typically exhibit cognitive deficits. While single bouts of physical activity (PA) have shown cognitive benefits in typically developing individuals, the effects on those with ID are unclear. This study aimed to investigate the effectiveness of single bouts of PA on cognition in…
Descriptors: Intellectual Disability, Physical Activity Level, Program Effectiveness, Physical Activities
Jean Ware; Susan Buell; Darren D. Chadwick; Jill Bradshaw; Juliet Goldbart – Journal of Applied Research in Intellectual Disabilities, 2024
Introduction: This paper aims to identify to what extent staff training interventions are successful in enhancing the development of communication skills in people with profound intellectual and multiple disabilities. Methods: A systematic review was undertaken, conforming to PRISMA guidelines. English language, peer reviewed, empirical studies of…
Descriptors: Children, Adults, Intellectual Disability, Severe Disabilities
Hoogsteyns, Maartje; Zaal-Schuller, Ilse; Huisman, Sylvia; Nieuwenhuijse, Appolonia Marga; Etten-Jamaludi, Faridi; Willems, Dick; Kruithof, Kasper – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Caring for persons with profound intellectual and multiple disabilities (PIMD) demands specific expertise. Tacit knowledge seems to play an important role, but little is known about its nature, including what is necessary for its development and transfer. Aim: To gain understanding of the nature and development of tacit knowledge…
Descriptors: Severe Intellectual Disability, Multiple Disabilities, Severe Disabilities, Knowledge Level
O'Leary, Lisa; Maine, Andrew; Ring, Nicola; Reid, James; Speirs, Lorraine; Allan, Louise; Truesdale, Maria; Taggart, Laurence – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Dysphagia can have serious health implications including choking and respiratory infection leading to poorer quality of life. People with intellectual disabilities are at higher risk of dysphagia related health complications and early death. Robust dysphagia screening tools are vital for this population. Method: A scoping review and…
Descriptors: Physical Disabilities, Eating Disorders, Intellectual Disability, Screening Tests
Marissa A. Diaz; Jerome E. Bickenbach; Carla Sabariego; Renaldo M. Bernard – Journal of Applied Research in Intellectual Disabilities, 2024
Background: A paucity of qualitative research on sensitive topics that focuses on participants with intellectual disabilities leaves their views unexplored. This scoping review mainly aimed to provide an overview of qualitative data collection methods used in research involving participants with intellectual disabilities to explore death and…
Descriptors: Research Methodology, Intellectual Disability, Death, Research
S. Collings; G. Hindmarsh; H. Wilkinson; G. Llewellyn – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Population studies confirm mothers with intellectual disability have poorer antenatal outcomes than other mothers but less is known about any differences in sociodemographic characteristics between these groups. Method: A systematic review of population-level studies on parents with intellectual disability was undertaken from January…
Descriptors: Parents with Disabilities, Mothers, Intellectual Disability, Participant Characteristics
Annick Zijlstra; Tessel Sterenborg; Maroesjka Nieuwenhuijzen; Bram O. Castro – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Newborns of parents with intellectual disabilities face higher risks in their environment for child unsafety, despite parents' good intentions. To help parents prevent unsafe circumstances, a good understanding of the risk factors faced by these parents is needed. Methods: This casefile study examined (1) which risk factors were…
Descriptors: Intellectual Disability, Parents with Disabilities, Pregnancy, Case Records
Dominique Grohmann; David Wellsted; Silvana E. Mengoni – Journal of Applied Research in Intellectual Disabilities, 2024
Background: People with intellectual disabilities may experience frailty earlier than the general population. This scoping review aimed to investigate how frailty is defined, assessed, and managed in adults with an intellectual disability; factors associated with frailty; and the potential impact of COVID-19 on frailty identification and…
Descriptors: Intellectual Disability, Adults, COVID-19, Pandemics
Peter Baker; Josephine Chishty-Collins; Nick Gore – Journal of Applied Research in Intellectual Disabilities, 2025
Background: The psychological wellbeing of staff who provide support to people with intellectual and developmental disabilities is one of the crucial factors in determining the quality of provision offered. An understanding of the current status and influencing variables of staff psychological wellbeing is considered to be vital in this respect.…
Descriptors: Adults, Intellectual Disability, Employees, Caregivers
Sophie C. Westrop; Laura Maenhout; Craig A. Melville; Arlene M. McGarty – Journal of Applied Research in Intellectual Disabilities, 2024
Background: There is a paucity of theory-informed physical activity research with adults with intellectual disabilities. This study aimed to address this by synthesising existing literature and applying the COM-B model to understand capabilities, opportunities and motivations. Methods: A qualitative evidence synthesis was conducted and reported in…
Descriptors: Adults, Intellectual Disability, Physical Activities, Opportunities
Bruno, Natasha; Richardson, Alanna; Kauffeldt, Kaitlyn D.; Tomasone, Jennifer R.; Arbour-Nicitopoulos, Kelly; Latimer-Cheung, Amy E. – Journal of Applied Research in Intellectual Disabilities, 2022
Objective: Quality participation, defined as satisfying and enjoyable involvement, is one of the most valued life outcomes for children with intellectual and developmental disabilities. To broaden understandings of quality participation, our review explored participation experiences of children with intellectual and developmental disabilities.…
Descriptors: Foreign Countries, Developmental Disabilities, Children, Intellectual Disability
Taylor, Joshua; Avellone, Lauren; Brooke, Valerie; Wehman, Paul; Inge, Katherine; Schall, Carol; Iwanaga, Kanako – Journal of Applied Research in Intellectual Disabilities, 2022
Background: Although competitive integrated employment (CIE) has been established as a goal of employment research, policy, and practice for individuals with intellectual and developmental disabilities, the secondary benefits of CIE are rarely discussed. Aims: The purpose of this systematic review was to analyze and synthesise research related to…
Descriptors: Intellectual Disability, Developmental Disabilities, Employment Level, Mental Health
Wissing, Maureen B. G.; Ulgiati, Aurora M.; Hobbelen, Johannes S. M.; De Deyn, Peter P.; Waninge, Aly; Dekker, Alain D. – Journal of Applied Research in Intellectual Disabilities, 2022
Background: Dementia is increasingly prevalent in people with severe/profound intellectual disabilities. However, early detection and diagnosis of dementia is complex in this population. This study aimed to identify observable dementia symptoms in adults with severe/profound intellectual disabilities in available literature. Method: A systematic…
Descriptors: Dementia, Severe Intellectual Disability, Disability Identification, Identification
