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Weam Alhulaibi; Janine Stockdale; Paul McAleer – British Journal of Learning Disabilities, 2025
Background: During pregnancy, some women with an intellectual disability encounter some challenges, and some midwives who provide them with support lack the knowledge to provide the best care. This systematic review explores the experiences of women with intellectual disability during pregnancy and midwives' experiences of providing care. Method:…
Descriptors: Females, Intellectual Disability, Pregnancy, Allied Health Personnel
Dawn E. Cavanagh; Sue Caton; Jodie Rawles; Katherine Runswick-Cole; Chris Hatton; Umesh Chauhan; Christine Hutchinson – Journal of Applied Research in Intellectual Disabilities, 2024
Background: People with intellectual disabilities are more likely to be prescribed psychotropic medication than the general population and are frequently prescribed multiple medications. Understanding people with intellectual disabilities and carer perspectives is essential to improving the quality of psychotropic medication prescribing and usage.…
Descriptors: Literature Reviews, Patients, Intellectual Disability, Drug Therapy
Hoogsteyns, Maartje; Zaal-Schuller, Ilse; Huisman, Sylvia; Nieuwenhuijse, Appolonia Marga; Etten-Jamaludi, Faridi; Willems, Dick; Kruithof, Kasper – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Caring for persons with profound intellectual and multiple disabilities (PIMD) demands specific expertise. Tacit knowledge seems to play an important role, but little is known about its nature, including what is necessary for its development and transfer. Aim: To gain understanding of the nature and development of tacit knowledge…
Descriptors: Severe Intellectual Disability, Multiple Disabilities, Severe Disabilities, Knowledge Level
Walsh, Susan; O'Mahony, Mairin; Hegarty, Josephine; Farrell, Dawn; Taggart, Laurence; Kelly, Louise; Sahm, Laura; Corrigan, Maria; Caples, Maria; Martin, Anne-Marie; Tabirca, Sabin; Corrigan, Mark A.; Lehane, Elaine – Journal of Intellectual Disabilities, 2022
Introduction: Incidence rates for developing breast cancer are similar for women regardless of intellectual ability. However, women with an intellectual disability present with advanced breast cancers, which often have a poor prognosis. Method: A structured narrative review of the literature was performed to explore the concepts of breast…
Descriptors: Intellectual Disability, Females, Cancer, Barriers
Gracie Hay; Nathan J. Wilson; Natalie Ong; Patrick Benson; Gisselle Gallego – Journal of Intellectual & Developmental Disability, 2024
Background: The attitudes, perceptions and inherent biases of healthcare professionals (HCPs) have the potential to influence and inform health outcomes of people with intellectual disability. This review aimed to identify what educational interventions have been conducted to improve the attitude, knowledge, and confidence of HCPs in caring for…
Descriptors: Allied Health Personnel, Attitudes, Knowledge Level, Self Efficacy
Hanley, Edina; Martin, Anne-Marie; Dalton, Caroline; Lehane, Elaine – Journal of Intellectual Disabilities, 2023
People with severe/profound intellectual disability experience challenges in communicating and require their communication partners to adapt to their means of communication. Augmentative and Alternative Communication (AAC) is recognised as a potential means to meet their communication needs. Interventions need to be aimed at both the individual…
Descriptors: Severe Intellectual Disability, Interpersonal Communication, Augmentative and Alternative Communication, Intervention
Eli Ristevski; Fiona McCook; Sharyn Thompson; Zoe Duncan; Bill Lawler; Carole Broxham – Journal of Applied Research in Intellectual Disabilities, 2024
Background: While barriers to participation in physical activity are well documented, there is no consolidated evidence on strategies promoting participation of people with intellectual disability in physical activities. Methods: We conducted a scoping review to examine initiatives used to facilitate the inclusion of people with intellectual…
Descriptors: Inclusion, Intellectual Disability, Physical Activities, Athletics
Tschamper, Merete Kristin; Systad, Silje – Journal of Intellectual Disabilities, 2022
Persons with rare, epilepsy-related disorders often have intellectual disability and need long-term care. Informal and formal caregivers need information in order to care for the persons in a safe way. Aims: The aims of this review were: (1) to obtain an overview of caregiver-reported information needs; and (2) to investigate if there are…
Descriptors: Intellectual Disability, Epilepsy, Caregivers, Access to Information
Samways, Beverley – Journal of Intellectual Disabilities, 2022
Background: National Institute for Health and Care Excellence (NICE, 2013) Guidance on Self-Harm states that professionals supporting people who self-harm should demonstrate compassion, respect and dignity. This literature review examines the evidence for professionals' attitudes towards people with intellectual disabilities who self-harm. Method:…
Descriptors: Intellectual Disability, Self Destructive Behavior, Professional Personnel, Attitudes
Danker, Joanne; Dreyfus, Shoshana; Strnadová, Iva; Pilkinton, Mary – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Adults with severe/profound intellectual disability typically face poor communication outcomes as they are often nonverbal and need their supporters to provide for their communication needs. This review aimed to identify studies focused on the communication resources people with severe/profound intellectual disability use for…
Descriptors: Severe Intellectual Disability, Interpersonal Communication, Barriers, Affordances
Kármán, Bianka; Szekeres, Ágota; Papp, Gabriella – Journal of Applied Research in Intellectual Disabilities, 2022
Background: The inclusion of people with intellectual disabilities is limited due to a high prevalence of prejudice towards this population. We reviewed studies to identify the most effective intervention methods that focus on acceptance of people with intellectual disabilities. Method: A literature review was conducted using several…
Descriptors: Inclusion, Intellectual Disability, Social Bias, Attitudes toward Disabilities
Walsh, S.; O'Mahony, M.; Lehane, E.; Farrell, D.; Taggart, L.; Kelly, L.; Sahm, L.; Byrne, A.; Corrigan, M.; Caples, M.; Martin, A. M.; Tabirca, S.; Corrigan, M. A.; Hegarty, J. – Journal of Intellectual Disabilities, 2021
Background: Women with an intellectual disability (ID) have a similar risk of developing breast cancer as women in the general population yet present with later stage breast cancers, which have poorer outcomes. Aim: To identify whether there is a need to develop a breast cancer awareness intervention for women with an ID. Methods: Interventions…
Descriptors: Cancer, Females, Intellectual Disability, At Risk Persons
Goodall, Maeve; Irving, Kate; Nevin, Mary – Journal of Applied Research in Intellectual Disabilities, 2023
Background: People with profound intellectual disabilities are a population with complex comorbidities. Total pain recognises the interconnectedness of aspects of pain; social, psychological, physical, emotional, spiritual. Pain is under-recognised due to communication challenges and carers perceptions. This review's purpose is to synthesise…
Descriptors: Severe Intellectual Disability, Pain, Perception, Knowledge Level
Schwartz, Rachel J.; Robertson, Rachel E. – Career Development and Transition for Exceptional Individuals, 2019
Adults with intellectual disabilities (ID) struggle to gain access to sexual knowledge and experiences. Sexual knowledge increases opportunities for intimacy and positive sexual identities as well as decreases the risk of victimization. This review evaluated the extant literature on sexual education programs for adults with ID. Six studies met…
Descriptors: Sex Education, Adults, Intellectual Disability, Program Effectiveness
Maine, Andrew; Brown, Michael; Dickson, Adele; Truesdale, Maria – Journal of Intellectual Disabilities, 2020
People with intellectual disabilities (ID) experience significant barriers to diabetes self-management (DSM), yet there remains a paucity of research within this population. An overview of the literature on people with ID and their caregivers' experiences of living with and self-managing type 2 diabetes is provided. Meta-aggregative methods were…
Descriptors: Intellectual Disability, Self Management, Adults, Caregivers
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