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Tacit Knowledge in Dyads of Persons with Profound Intellectual and Multiple Disabilities and Their Caregivers: An Interpretative Literature Study
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Hoogsteyns, Maartje; Zaal-Schuller, Ilse; Huisman, Sylvia; Nieuwenhuijse, Appolonia Marga; Etten-Jamaludi, Faridi; Willems, Dick; Kruithof, Kasper – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Caring for persons with profound intellectual and multiple disabilities (PIMD) demands specific expertise. Tacit knowledge seems to play an important role, but little is known about its nature, including what is necessary for its development and transfer. Aim: To gain understanding of the nature and development of tacit knowledge…
Descriptors: Severe Intellectual Disability, Multiple Disabilities, Severe Disabilities, Knowledge Level
Communication Partners Experiences of Communicating with Adults with Severe/Profound Intellectual Disability through Augmentative and Alternative Communication: A Mixed Methods Systematic Review
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Hanley, Edina; Martin, Anne-Marie; Dalton, Caroline; Lehane, Elaine – Journal of Intellectual Disabilities, 2023
People with severe/profound intellectual disability experience challenges in communicating and require their communication partners to adapt to their means of communication. Augmentative and Alternative Communication (AAC) is recognised as a potential means to meet their communication needs. Interventions need to be aimed at both the individual…
Descriptors: Severe Intellectual Disability, Interpersonal Communication, Augmentative and Alternative Communication, Intervention
Scoping Review on Communication Systems Used by Adults with Severe/Profound Intellectual Disability for Functional Communication
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Danker, Joanne; Dreyfus, Shoshana; Strnadová, Iva; Pilkinton, Mary – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Adults with severe/profound intellectual disability typically face poor communication outcomes as they are often nonverbal and need their supporters to provide for their communication needs. This review aimed to identify studies focused on the communication resources people with severe/profound intellectual disability use for…
Descriptors: Severe Intellectual Disability, Interpersonal Communication, Barriers, Affordances
The Recognition, Assessment and Perceptions of Total Pain in People with Profound Intellectual Disabilities: A Mixed Methods Systematic Review
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Goodall, Maeve; Irving, Kate; Nevin, Mary – Journal of Applied Research in Intellectual Disabilities, 2023
Background: People with profound intellectual disabilities are a population with complex comorbidities. Total pain recognises the interconnectedness of aspects of pain; social, psychological, physical, emotional, spiritual. Pain is under-recognised due to communication challenges and carers perceptions. This review's purpose is to synthesise…
Descriptors: Severe Intellectual Disability, Pain, Perception, Knowledge Level