It is perhaps inevitable that the academic study of learning disabilities is often undertaken by established scholars with little lived experience of the condition. So, what has it been like for someone from outside the academy, with a long career in the arts, who is also the father of a severely learning-disabled young man, to write a book-length…

Background: There is a strong ethical case and an urgent need for more participatory research practices in disability research but a lack of resources to support this. It is important to involve people with learning disabilities and carers at all stages, including when designing training for co-research. Methods: We co-developed training materials…

In this paper, the authors review life stories in learning disability research and practice since the 1960s. Although there is consistent evidence of their value in giving people a voice and an identity beyond the service label, they are not widely used in the provision of health and social care. This is despite long-standing policy commitments to…

This article traces and summarises historiographical trends in the history of learning disability. It identifies three major waves of historical approaches beginning with a medicalised analysis which emerged in the early 20th century. This presented a story of medical progress which began with the asylum movement of the 19th century and…

My name is Paul Christian. I am a Black British man with learning disabilities. The lives and experiences of Black people with learning disabilities are underrepresented in the UK history of learning disability. This article explains my involvement in activism to change this and shares the learning from these projects. It discusses the process of…

Background: In 2006, the United Nations agreed the "Convention On the Rights Of Persons With Disabilities." Article 19, 'Living independently and being included in the community' sets out the 'equal rights of all persons with disabilities to live in the community, with choices equal to others…' A generation earlier, a small group of…

This paper reviews the challenges faced by a team at the Grace Eyre Foundation in running a coproduced oral history project during the pandemic. It examines the benefits and challenges of working online, comparing this to face-to-face approaches. For over 100 years, the Grace Eyre Foundation has provided support to people with learning…

The history of self-advocacy in England has not been recorded, other than the stories of individuals and of some individual groups. We, therefore, decided to interview some leaders of the self-advocacy movement and some people who were allies and supporters. Three researchers, two self-advocates and one academic, interviewed 11 self-advocate…

Background: Over 10 years ago, Lisa Scott first began making art at a studio in Sydney that supports people with intellectual disability to realise their creative ambitions. In this article, we consider what it has meant for Lisa to become an artist and, in the process, share the story of other big changes in her life. Methods: During…

This paper reports the use of a dialogic approach to working inclusively with two young people with intellectual disability as part of a Research Reference Committee for a project that examined how adults with intellectual disability and their families plan for their future. The paper begins with an overview of the role of the Research Reference…

Background: Individuals with intellectual disability experience the same chronic diseases and conditions as the general population, but are more likely to have physical and psychological co-morbidities, resulting in a higher risk of experiencing pain and having more frequent or severe pain. Method: This position paper aims to highlight the…

While recent years have seen an increase in the number of participatory and inclusive research studies being undertaken where people with learning disabilities are active members of the research team, little has been published about how teams decide what to research. This paper aims to fill this gap by discussing how in one area of Wales a…

Athletes with learning disabilities have had a difficult time being included in the Paralympics. They have faced a lot of discrimination, including from other disabled athletes, and just when they were finally included (at the Sydney games in 2000), the Spanish Basketball team cheated by having players on their team who did not have learning…

Paul Richards is one of those individuals who make a difference and is as far from institutional as one can be. The author met up with him at the Learning Disability Today conference in London to talk more about his work and life. Paul coordinates the service user involvement across Southdown Housing Association, based in Sussex.

This paper describes the current challenges facing nurses and other professionals who care for people with profound and multiple intellectual disabilities. This particularly vulnerable group of service users often rely on a repertoire of non-verbal behaviours to communicate their needs and wishes. These challenges include the requirements of…