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Development, Implementation, and Evaluation of an Advance Care Planning Program for Professionals in Palliative Care of People with Intellectual Disability
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Voss, Hille; Vogel, Anique G. F. M.; Wagemans, Annemieke M. A.; Francke, Anneke L.; Metsemakers, Job F. M.; Courtens, Annemie M.; de Veer, Anke J. E. – Intellectual and Developmental Disabilities, 2021
In this article we describe how an advance care planning (ACP) program was developed, implemented, and evaluated. Our aim was to improve ACP in palliative care for people with intellectual disability (ID). The program was based on 10 competencies needed for ACP and was developed in a co-design process with people with ID, relatives, and…
Descriptors: Intellectual Disability, Planning, Medical Services, Quality of Life
Quality of Life Indicators for Individuals with Intellectual Disabilities: Extending Current Practice
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Brown, Ivan; Hatton, Chris; Emerson, Eric – Intellectual and Developmental Disabilities, 2013
Quality of life is a social construct that is measured by what are considered to be its most appropriate indicators. Quality of life measurement in intellectual disability reflects a variety of indicators, often grouped under life domains. Subjective and objective methods of measuring indicators each have strengths and drawbacks, but it is…
Descriptors: Mental Retardation, Quality of Life, Social Indicators, Measurement Techniques
National Core Indicators: Ten Years of Collaborative Performance Measurement
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Bradley, Valerie J.; Moseley, Chas – Intellectual and Developmental Disabilities, 2007
In the past 10 years, people have witnessed significant changes in the nature and extent of the publicly financed systems of services and supports for individuals with developmental disabilities and their families. Growing service needs, declining state revenues, mounting pressures on federal and state Medicaid budgets, and heightened federal…
Descriptors: Measurement, Cooperation, Developmental Disabilities, Well Being