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Direct linkMaes, Bea; Nijs, Sara; Vandesande, Sien; Van keer, Ines; Arthur-Kelly, Michael; Dind, Juliane; Goldbart, Juliet; Petitpierre, Geneviève; Van der Putten, Annette – Journal of Applied Research in Intellectual Disabilities, 2021
Background: Within the context of the Special Interest Research Group (SIRG) on Persons with Profound Intellectual and Multiple Disabilities (PIMD), researchers often discuss the methodological problems and challenges they are confronted with. The aim of the current article was to give an overview of these challenges. Methods: The challenges are…
Descriptors: Severe Intellectual Disability, Multiple Disabilities, Research Methodology, Barriers
Watson, Joanne; Voss, Hille; Bloomer, Melissa J. – Research and Practice for Persons with Severe Disabilities, 2019
With a focus on the use of narrative approaches, this article is a commentary on decision-making support for people with profound intellectual and multiple disability (PIMD) at the end-of-life. Due to improved health care, people with PIMD are living longer lives than ever before. Therefore, they are increasingly facing decisions relating to…
Descriptors: Preferences, Death, Decision Making, Severe Intellectual Disability
