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Racial and Ethnic Differences in Behavioral Problems and Medication Use among Children with Autism Spectrum Disorders
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Quebles, Irina; Solomon, Olga; Smith, Kathryn A.; Rao, Sowmya R.; Lu, Frances; Allen, Colleen; Anaya, Grace; Yin, Larry – American Journal on Intellectual and Developmental Disabilities, 2020
We examined racial and ethnic differences in the prevalence of behavioral problems measured by the Child Behavioral Checklist (CBCL), sleep disturbances measured by the Child Sleep Habits Questionnaire (CSHQ), and medication use among children with Autism Spectrum Disorders (ASD). We analyzed data from the Autism Treatment Network (ATN) dataset…
Descriptors: Racial Differences, Ethnicity, Incidence, Behavior Problems
Active Support Training, Staff Assistance, and Engagement of Individuals with Intellectual and Developmental Disabilities in the United States: Randomized Controlled Trial
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Qian, Xueqin; Larson, Sheryl A.; Tichá, Renáta; Stancliffe, Roger; Pettingell, Sandra L. – American Journal on Intellectual and Developmental Disabilities, 2019
Two non-U.S. quasi-experimental studies reported Active Support training was associated with increased engagement in individuals with IDD, but no randomized controlled trials (RCTs) exist. We evaluated effects of Active Support training on staff assistance, and social and nonsocial engagement in 75 individuals with intellectual and developmental…
Descriptors: Intellectual Disability, Randomized Controlled Trials, Developmental Disabilities, Behavior Problems
Parental Perceptions of Autism Spectrum Disorder in Latinx and Black Sociocultural Contexts: A Systematic Review
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Rivera-Figueroa, Karla; Marfo, Nana Yaa A.; Eigsti, Inge-Marie – American Journal on Intellectual and Developmental Disabilities, 2022
Parents of children with autism spectrum disorder (ASD) face challenges in accessing diagnostic and treatment services; these challenges vary by race, ethnicity, and culture. This systematic review examines parental perceptions of ASD within Latinx and Black American communities. Findings indicate that interconnections with family and religious…
Descriptors: Parent Attitudes, Autism, Pervasive Developmental Disorders, Barriers
A Psychometric Evaluation of the Motor-Behavioral Assessment Scale for Use as an Outcome Measure in Rett Syndrome Clinical Trials
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Raspa, Melissa; Bann, Carla M.; Gwaltney, Angela; Benke, Timothy A.; Fu, Cary; Glaze, Daniel G.; Haas, Richard; Heydemann, Peter; Jones, Mary; Kaufmann, Walter E.; Lieberman, David; Marsh, Eric; Peters, Sarika; Ryther, Robin; Standridge, Shannon; Skinner, Steven A.; Percy, Alan K.; Neul, Jeffrey L. – American Journal on Intellectual and Developmental Disabilities, 2020
Rett syndrome (RTT) is a neurodevelopmental disorder that primarily affects females. Recent work indicates the potential for disease modifying therapies. However, there remains a need to develop outcome measures for use in clinical trials. Using data from a natural history study (n = 1,075), we examined the factor structure, internal consistency,…
Descriptors: Genetic Disorders, Psychometrics, Psychomotor Skills, Physical Disabilities
Seizures in Fragile X Syndrome: Characteristics and Comorbid Diagnoses
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Berry-Kravis, Elizabeth; Raspa, Melissa; Loggin-Hester, Lisa; Bishop, Ellen; Holiday, David; Bailey, Donald B., Jr. – American Journal on Intellectual and Developmental Disabilities, 2010
A national survey of caregivers of individuals with fragile X syndrome addressed characteristics of epilepsy and co-occurring conditions. Of the 1,394 individuals (1,090 males and 304 females) with the full mutation, 14% of males and 6% of females reported seizures. Seizures were more often partial, began between ages 4 and 10 years, and were…
Descriptors: Seizures, Caregivers, National Surveys, Disabilities
Factorial Validity of the Supports Intensity Scale (SIS)
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Kuppens, Sofie; Bossaert, Goele; Buntinx, Wil; Molleman, Catherin; Van den Abbeele, Ann; Maes, Bea – American Journal on Intellectual and Developmental Disabilities, 2010
The Supports Intensity Scale (SIS) was developed to provide information on the support needs of persons with intellectual disability. Our aim here was to evaluate the factorial validity of the SIS in a sample of 14,862 persons with intellectual disability. The structure of the instrument as promulgated by the developers was tested and its…
Descriptors: Mental Retardation, Validity, Factor Structure, Measures (Individuals)
Monoamine Oxidase a Promoter Gene Associated with Problem Behavior in Adults with Intellectual/Developmental Disabilities
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May, Michael E.; Srour, Ali; Hedges, Lora K.; Lightfoot, David A.; Phillips, John A., III; Blakely, Randy D.; Kennedy, Craig H. – American Journal on Intellectual and Developmental Disabilities, 2009
A functional polymorphism in the promoter of the gene encoding monoamine oxidase A has been associated with problem behavior in various populations. We examined the association of MAOA alleles in adult males with intellectual/developmental disabilities with and without established histories of problem behavior. These data were compared with a…
Descriptors: Developmental Disabilities, Males, Genetic Disorders, Mental Retardation
Secondary Conditions in People with Developmental Disability
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Koritsas, Stella; Iacono, Teresa – American Journal on Intellectual and Developmental Disabilities, 2011
The authors investigated secondary conditions in people with developmental disabilities in terms of (a) the average number of conditions experienced and overall health and independence, (b) their degree and nature, and (c) gender differences. Information was obtained by a questionnaire completed by the caregivers for 659 people with developmental…
Descriptors: Developmental Disabilities, Health, Gender Differences, Caregivers
Overweight and Obesity among Adults with Intellectual Disabilities Who Use Intellectual Disability/Developmental Disability Services in 20 U.S. States
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Stancliffe, Roger J.; Lakin, K. Charlie; Larson, Sheryl; Engler, Joshua; Bershadsky, Julie; Taub, Sarah; Fortune, Jon; Ticha, Renata – American Journal on Intellectual and Developmental Disabilities, 2011
The authors compare the prevalence of obesity for National Core Indicators (NCI) survey participants with intellectual disability and the general U.S. adult population. In general, adults with intellectual disability did not differ from the general population in prevalence of obesity. For obesity and overweight combined, prevalence was lower for…
Descriptors: Obesity, Incidence, Adults, Females
Changes in Maladaptive Behaviors from Midchildhood to Young Adulthood in Autism Spectrum Disorder
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Anderson, Deborah K.; Maye, Melissa P.; Lord, Catherine – American Journal on Intellectual and Developmental Disabilities, 2011
The current study prospectively examined trajectories of change in symptoms of irritability, hyperactivity, and social withdrawal, as well as predictors of such behaviors, for ages 9-18 years for youths with autism spectrum disorder and a comparison group with nonspectrum developmental delays. Children with more severe core features of autism had…
Descriptors: Autism, Pervasive Developmental Disorders, Adjustment (to Environment), Developmental Delays
Into the Unknown: Aging with Autism Spectrum Disorders
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Perkins, Elizabeth A.; Berkman, Karen A. – American Journal on Intellectual and Developmental Disabilities, 2012
Research investigation of older adults with autism spectrum disorders (ASD) noticeably lags behind studies of children and younger adults with ASD. This article reviews the current literature regarding a range of quality of life outcomes of aging adults with ASD. Studies that have addressed life expectancy, comorbid physical and mental health…
Descriptors: Aging (Individuals), Quality of Life, Autism, Comorbidity
Mental Health Problems in Adults with Williams Syndrome
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Stinton, Chris; Elison, Sarah; Howlin, Patricia – American Journal on Intellectual and Developmental Disabilities, 2010
Although many researchers have investigated emotional and behavioral difficulties in individuals with Williams syndrome, few have used standardized diagnostic assessments. We examined mental health problems in 92 adults with Williams syndrome using the Psychiatric Assessment Schedule for Adults with Developmental Disabilities--PAS-ADD (Moss,…
Descriptors: Developmental Disabilities, Mental Health, Depression (Psychology), Mental Disorders
Self-Injurious Behavior and Fragile X Syndrome: Findings from the National Fragile X Survey
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Symons, Frank J.; Byiers, Breanne J.; Raspa, Melissa; Bishop, Ellen; Bailey, Donald B., Jr. – American Journal on Intellectual and Developmental Disabilities, 2010
We used National Fragile X Survey data in order to examine reported self-injurious behavior (SIB) to (a) generate lifetime and point prevalence estimates, (b) document detailed features of SIB (frequency, types, location, severity) in relation to gender, and (c) compare comorbid conditions between matched pairs (SIB vs. no SIB). Results indicate…
Descriptors: Topography, Self Destructive Behavior, Autism, Seizures
Obesity, Food Selectivity, and Physical Activity in Individuals with Fragile X Syndrome
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Raspa, Melissa; Bailey, Donald B., Jr.; Bishop, Ellen; Holiday, David; Olmsted, Murrey – American Journal on Intellectual and Developmental Disabilities, 2010
National survey data from 884 families were used to examine the overall health of children and adults with fragile X syndrome. Results indicate the rate of obesity in adults with fragile X syndrome is similar to the general population (30%). Male children with fragile X syndrome, however, had higher rates of obesity (31%) when compared with…
Descriptors: Obesity, Body Composition, Physical Activities, Physical Activity Level
Risk of Fall for Individuals with Intellectual Disability
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Chiba, Yoichi; Shimada, Atsuyoshi; Yoshida, Futoshi; Keino, Hiromi; Hasegawa, Mariko; Ikari, Hiroyuki; Miyake, Shikako; Hosokawa, Masanori – American Journal on Intellectual and Developmental Disabilities, 2009
Our aim was to identify risk factors for falling and establish a method to assess risk for falls in adults with intellectual disabilities. In a cross-sectional survey of 144 Japanese adults, we found that age, presence of epilepsy, and presence of paretic conditions were independent risk factors. The Tinetti balance and gait instrument was…
Descriptors: Mental Retardation, Suicide, At Risk Persons, Adults
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