Respite care is one of a range of support services typically available to carers of people with dependencies who need a break from caring, and the factors that influence the need for respite care are generally similar irrespective of the nature of the dependencies. Hence, the expectations of families potentially have policy and service provision…

This site visit report describes activities, strengths, and challenges of the Area Agency for Developmental Services in Region VI of New Hampshire, with an emphasis on bringing people with developmental disabilities out of the state institution to community-based services. The agency provides case management services, family support services, and…

This site visit report describes the development and activities of the New Hampshire Family Support Network for families of people with developmental disabilities, and is based on a review of documents, interviews with key people, and participant observation. It begins with a brief history of family activism in New Hampshire, noting the early high…

The study examined family support services currently utilized by families of individuals with developmental disabilities, and family support services seen as important by respondent families in the state of Hawaii. A total of 625 questionnaires were distributed via 24 agencies; 234 useable surveys were returned for a 39% response rate. The survey…

The findings of a 1978 project of the Massachusetts Developmental Disabilities Council on the need for respite care services and the various models for delivery of respite care are reported. Methodology included review of respite care regulations in 12 states, site visits and a survey of Massachusetts programs, and a survey of 339 families with…

A report of a project that established systems of respite care and training of parents who have developmentally disabled members in their home is presented. Attention is directed to project objectives, activities, and outcomes and to the following specific components: collection and analysis of data on factors promoting utilization and…

Two surveys, one qualitative and one quantitative, were conducted of the opinions and experiences of New York State parents of children with learning delays and disabilities regarding parental labor force participation, child care options, and preferences in state policies. A total of 141 parents responded to the quantitative survey and 210 to the…

Special Training for Exceptional People (STEP) is a private, nonprofit agency serving children with developmental disabilities (0-22 years) and their families in the south-central section of Montana, encompassing Billings and a Crow Indian Reservation. One of the services provided by STEP is specialized family care, to prevent placement out of…