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Edina Hanley; Caroline Dalton; Elaine Lehane; Anne-Marie Martin – British Journal of Learning Disabilities, 2025
Background: This study explores communication partners' perceptions of their roles and responsibilities in the design, planning and use of augmentative and alternative communication (AAC) with individuals with severe/profound intellectual disability. Methods: A qualitative descriptive approach was used. Purposive sampling, data collection and…
Descriptors: Interpersonal Communication, Augmentative and Alternative Communication, Severe Intellectual Disability, Role
Wieneke Penninga; Alexander H. C. Hendriks; Hedwig J. A. van Bakel; Petri J. C. M. Embregts – British Journal of Learning Disabilities, 2025
Background: Initiating meaningful moments of interaction with people with profound intellectual disabilities can prove to be difficult for support staff. Exploring the behaviour of support staff that precedes the initiations of behaviour by people with profound intellectual disabilities helps to shed light upon the potential facilitating effects…
Descriptors: Severe Intellectual Disability, Interpersonal Relationship, Verbal Communication, Nonverbal Communication
Sien Vandesande; Evy Meys; Bea Maes – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Parents' decisions to use out-of-home support for children with intellectual disabilities significantly impact all family members, including siblings. However, siblings' perspectives on this transition to group homes remain underexplored. This study examines siblings' emotional experiences and changes in their personal and family lives…
Descriptors: Siblings, Children, Adolescents, Emotional Response
Femmianne Bredewold; Simon van der Weele – Journal of Intellectual & Developmental Disability, 2025
Background: Researching the perspectives of people with profound intellectual and multiple disabilities (PIMD) presents complexity and uncertainty. Traditional research often prioritises rational, objectivist methods, which may overlook this complexity. Aims: This study aimed to develop methodological cues for researchers studying the perspectives…
Descriptors: Research Methodology, Cues, Family Influence, Caregivers
Ilse Harmina Zaal-Schuller; K. Kruithof; M. Hoogsteyns; A.M. Nieuwenhuijse; D.L. Willems; S.A. Huisman – Journal of Intellectual & Developmental Disability, 2025
Background: Patients with profound intellectual and multiple disabilities (PIMD) cannot clearly express themselves. Therefore, tacit knowledge (TK) is crucial in caring for individuals with PIMD, while it possibly also plays a significant role in medical consultations. Method: A qualitative inductive, thematic analysis was performed of 14…
Descriptors: Patients, Severe Intellectual Disability, Multiple Disabilities, Knowledge Level
Jakub Niedbalski – Journal of Intellectual & Developmental Disability, 2025
Background: The aim of this study was to establish the perceived quality of life in twin siblings of individuals with profound intellectual and multiple disabilities (PIMD) living in Poland. Method: Semi-structured interviews were conducted with siblings of people with PMID. The interviews were subjected to thematic analysis according to grounded…
Descriptors: Twins, Quality of Life, Siblings, Severe Intellectual Disability
Siméon T. A. Lahaije; Jorien Luijkx; Aly Waninge; Annette A. J. van der Putten – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Families with a child with profound intellectual and multiple disabilities have to manage the pervasive support needs of their child, which is a complex task. By properly supporting them, we can ensure these families live a positive and meaningful life. Method: A product to support these families was developed using the method of…
Descriptors: Curriculum Development, Online Courses, Training, Government Employees
Anna Rensfeldt Flink; Sofia Wallin; Johanna Larsson; Ellen Westling; Jakob Åsberg Johnels – Journal of Research in Special Educational Needs, 2025
This mixed methods survey study aims to investigate school staff's perspectives on using augmentative and alternative communication (AAC) with students with the most severe disabilities in Swedish school settings. The study employed a convergent mixed methods design, where both quantitative and qualitative data were collected and analysed in…
Descriptors: Foreign Countries, School Personnel, Attitudes, Augmentative and Alternative Communication
Annamarie Elisabet Wyngaard; Catharina Jacoba Elizabeth Uys – Journal of Applied Research in Intellectual Disabilities, 2025
Background: When supporting learners with severe intellectual disabilities, teaching methods needs to be adapted. Vona du Toit Model of Creative Ability (VdTMoCA) aims to enhance participation and facilitate adaptive responses through targeted intervention principles. This study aimed to develop and evaluate the impact of an intervention programme…
Descriptors: Intellectual Disability, Independent Living, Severe Intellectual Disability, Students with Disabilities
Huda Almumen; Ali Al-Jafar – Exceptionality Education International, 2025
This study examined the effects of multisensory storytelling facilitated through iPads on the understanding of science concepts related to botany among students with severe intellectual disability (ID). A single-subject, multiple- baseline design was used to evaluate three participants diagnosed with severe ID. During the intervention phase,…
Descriptors: Scientific Concepts, Story Telling, Intervention, Severe Intellectual Disability
M. L. Eding; M. Meeter; C. Schuengel – Journal of Research in Special Educational Needs, 2025
Education of children with moderate to severe intellectual disabilities requires adequate assessment of their educational needs and potential to learn. Dynamic testing using analogical reasoning tasks may be a promising way to perform such an assessment. However, it remains unclear how dynamic testing with these children may be done in practice.…
Descriptors: Delphi Technique, Moderate Intellectual Disability, Severe Intellectual Disability, Foreign Countries
B. W. Masondo; N. P. M. Mabaso – Interchange: A Quarterly Review of Education, 2025
Almost two decades later since the promulgation of the White Paper 6 on inclusive education policy in South Africa, the nation has yet to attain what the policy provided as practical inclusion guidelines within the education fraternity. Parental involvement is one of the guidelines that continue to be highlighted as an area of development in the…
Descriptors: Severe Intellectual Disability, Students with Disabilities, Partnerships in Education, Inclusion