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Stress, Anxiety and Coping in Adults with Down Syndrome: An Exploratory Co-Research Study
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Ashley Scott; Ryan Gould; Liam Quidore; Keryden Koeut-Futch; Emily Bock; Prisha Sujin Kumar; Staci Christensen; Augusta Edouard; Benjamin Golden; Eden Rapp; Kaethe Sigelko; Alexis Sokoloff; Caley Versfelt; Eric Rubenstein – Journal of Applied Research in Intellectual Disabilities, 2025
Background: At least half of children and adults with Down syndrome have a major mental health concern during their life but few studies ask people with Down syndrome directly about their experience. We used a co-research model to explore anxiety, stress, and coping in adults with Down syndrome. Methods: Our group of researchers and adults with…
Descriptors: Down Syndrome, Adults, Stress Variables, Anxiety
Increased Life Expectancy of People with Profound Intellectual and Multiple Disabilities: What Does It Change for Parents?
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Karine Baumstarck; Sibylle Del Duca; Houria El Ouazzani; Ilyes Hamouda; Any Beltran Anzola; Marie-Anastasie Aim; Marie-Christine Rousseau – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Advancements in medicine have increased the life expectancy of the people with profound intellectual and multiple disabilities. The hypothesis is that as parents get older, they worry about no longer being there for their child. This paper explores the extent to which the experiences of older parents may differ from that of younger…
Descriptors: Quality of Life, Severe Disabilities, Multiple Disabilities, Intellectual Disability
'Playing a Guessing Game': Recognising and Responding to Anxiety in Children with Intellectual Disability
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Fynn, Gabrielle; Porter, Melanie; Pellicano, Elizabeth – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Children with intellectual disability are at greater risk of developing anxiety than the general population. Limited research has examined the challenges associated with recognising and responding to anxiety in children with intellectual disability, and its perceived impact. Aim: This study aimed to explore anxiety in children with…
Descriptors: Intellectual Disability, Preadolescents, Adolescents, Anxiety
Prolonged Exposure Treatment for Post-Traumatic Stress Disorder: Single Case Studies in a Sample of Adults with Mild Intellectual Disabilities
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Paul Prins; Karin Nijhof – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Post-traumatic stress disorder (PTSD) is common in adults with intellectual disabilities. Often there are additional disorders such as substance use, mood and anxiety disorders. The current study focuses on the feasibility and initial efficacy of prolonged exposure (PE) for PTSD in adults with mild intellectual disabilities. The…
Descriptors: Posttraumatic Stress Disorder, Adults, Mild Intellectual Disability, Psychological Patterns
The Feasibility of an Adapted Virtual Mindfulness Intervention for Special Olympics Athletes and Their Caregivers
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Brianne Redquest; Chris A. Clark; Hangsel Sanguino; Yona Lunsky; Sue Hutton; Jonathan Weiss; Tom Davies; Carly A. McMorris – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Virtual mindfulness may be helpful for individuals with intellectual disabilities in the context of COVID-related disruptions of in-person programming, such as Special Olympics (SO). This study examined the feasibility of a virtual mindfulness intervention for SO athletes and their caregivers. Method: SO athletes (n = 44) and their…
Descriptors: Electronic Learning, Metacognition, Intellectual Disability, Athletes
Behavioural Interventions to Treat Anxiety in Adults with Autism and Moderate to Severe Intellectual Disabilities: The BEAMS-ID Feasibility Study
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Peter E. Langdon; Magdalena M. Apanasionok; Emma Scripps; Alastair Barrowcliff; Asit Biswas; Karen Bunning; Cheryl Burbidge; Katherine Byron-Daniel; Alex Cookson; Sarah Croom; Malwina Filipczuk; David Gillespie; Richard P. Hastings; Andrew Jahoda; Rachel McNamara; Lawrence Patterson; Dheeraj Rai; Robyn Steward; Kylie M. Gray – Journal of Applied Research in Intellectual Disabilities, 2024
Background: The aim of this feasibility study was to adapt and model a behavioural intervention for anxiety with autistic adults with moderate to severe intellectual disabilities. Method: Twenty-eight autistic adults with moderate or severe intellectual disabilities, 37 carers, and 40 therapists took part in this single-group non-randomised…
Descriptors: Autism Spectrum Disorders, Adults, Severe Intellectual Disability, Moderate Intellectual Disability
Schizophrenia in Autistic People with Intellectual Disabilities: Symptom Manifestations and Identification
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Bakken, Trine Lise; Kildahl, Arvid Nikolai; Ludvigsen, Linn Beate; Bjørgen, Tale Gjertine; Dalhaug, Caroline; Hellerud, Jane Margrete Askeland; Hove, Oddbjørn; Solheim-Inderberg, Ann Magritt; Karlsen, Kjersti; Helverschou, Sissel Berge – Journal of Applied Research in Intellectual Disabilities, 2023
Background: The assessment of schizophrenia in autistic people with intellectual disabilities is challenging. This study aimed to explore the identification of schizophrenia in this population. Methods: Using data from a clinical multi-centre study, reported symptoms in 26 autistic individuals with intellectual disabilities diagnosed with…
Descriptors: Schizophrenia, Autism Spectrum Disorders, Intellectual Disability, Mental Disorders
Comparison of Sport Competitive Anxiety Levels of Flemish Athletes with and without Intellectual Disability
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Van Biesen, Debbie; Marin-Urquiza, Adriana; McCulloch, Katina; Van Damme, Tine – Journal of Applied Research in Intellectual Disabilities, 2021
Background: High anxiety levels are common in people with intellectual disabilities (ID) and anxiety can affect sport performance, but sport competitive anxiety profiles in athletes with ID are unknown. Methods: A total of 303 athletes; 116 with ID (33% female, M age = 22.64, SD = 3.94), and 187 without ID (54% female, M age = 21.81, SD = 3.23),…
Descriptors: Foreign Countries, Athletes, Anxiety, Intellectual Disability
Permissive Parenting Mediates Parental Stress and Child Emotions in Families of Children with Down Syndrome
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Faught, Gayle G.; Phillips, B. Allyson; Conners, Frances A. – Journal of Applied Research in Intellectual Disabilities, 2022
Background: Parenting styles mediate parental stress and child emotions in families of typically developing (TD) children. Our main aim was to study these relations in families of children with Down syndrome (DS), who in past research reported increased parental stress and permissive parenting. Method: Our sample included 100 parents of children…
Descriptors: Parenting Styles, Anxiety, Psychological Patterns, Down Syndrome
The Experiences of Mothers of Children and Young People with Intellectual Disabilities during the First COVID-19 Lockdown Period
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Rogers, Gemma; Perez-Olivas, Gisela; Stenfert Kroese, Biza; Patel, Varsha; Murphy, Glynis; Rose, John; Cooper, Vivien; Langdon, Peter E.; Hiles, Steve; Clifford, Clair; Willner, Paul – Journal of Applied Research in Intellectual Disabilities, 2021
Recent COVID-19 lockdown restrictions resulted in reduced access to educational, professional and social support systems for children with intellectual disabilities and their carers. Aim: The aim of this study was to gain insight into the ways mothers of children with intellectual disabilities coped during the first 2020 lockdown period. Methods:…
Descriptors: Experience, Mothers, Intellectual Disability, COVID-19
Factors Influencing the Oral Health Behaviour of Dutch Adolescents with Mild to Borderline Intellectual Disabilities Living in Residential Care: A Qualitative Study
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Sonja M. Kalf-Scholte; Renate van Zoonen; Dina Sijperda-Abdul; Henk Algra; Cees Valkenburg – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Toothbrushing, limiting intake frequency, and scheduled visits to an oral healthcare professional (OHP) are key for good oral health. We aimed to explore factors influencing these oral health behaviours in Dutch adolescents with mild to borderline intellectual disabilities (MBID) in residential care. Method: Using a qualitative,…
Descriptors: Dental Health, Health Behavior, Adolescents, Mild Intellectual Disability
Virtual Acceptance and Commitment Training to Promote Wellbeing of Staff Supporting Adults with Intellectual Disabilities: A Feasibility Study
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Kendra Thomson; Sarah Davis; Sarah Ludmilla Bernier; Carly Magnacca; Steve Noone; Yona Lunsky – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Staff supporting people with intellectual disabilities may experience work-related stress that adversely impacts their wellbeing and capacity to provide support. Acceptance and Commitment Training interventions like Promotion of Acceptance in Carers and Teachers (PACT) have been shown to be effective for reducing stress and promoting…
Descriptors: Well Being, Adults, Intellectual Disability, Allied Health Personnel
Exploring the Acceptability of a Peer-Delivered Mental Health Intervention to Support Young Adults with Intellectual and/or Developmental Disabilities
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Ariel Schwartz; Nikola Davern; Alix Herer; Micah Peace-Urquilla; Jesse Corey; Dheva Muthuramalingam; Neha Vallabhaneni – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Young adults with intellectual and/or developmental disabilities lack access to mental health supports. Peer-delivered services may fill this gap. We adapted a theory-driven and evidence-based peer mentoring intervention for virtual-delivery and investigated its acceptability and participants' preliminary response. Methods: Twelve…
Descriptors: Intellectual Disability, Developmental Disabilities, Access to Health Care, Mental Health
Anxiety Characteristics in Individuals with Williams Syndrome
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Royston, Rachel; Oliver, Chris; Howlin, Patricia; Waite, Jane – Journal of Applied Research in Intellectual Disabilities, 2021
Background: Williams syndrome anxiety research predominantly focuses on disorder prevalence and symptomatology, categorised using standardised mental health classifications. However, the use of these assessments may not fully capture the phenotypic features of anxiety in Williams syndrome. In this study, we examined characteristics of anxiety…
Descriptors: Anxiety, Individual Characteristics, Genetic Disorders, Intellectual Disability
Does Talking about End of Life with Adults with Intellectual Disability Cause Emotional Discomfort or Psychological Harm?
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Stancliffe, Roger J.; Wiese, Michele Y.; Read, Sue; Jeltes, Gail; Barton, Rebecca; Clayton, Josephine M. – Journal of Applied Research in Intellectual Disabilities, 2021
Background: Caregivers often avoid involving people with intellectual disability in end-of-life discussions and activities. One reason is fear that the person may become upset or psychologically harmed. Methods: Pre and post a 6-month intervention about end of life, we assessed depression, anxiety, and fear of death among intervention (n = 24) and…
Descriptors: Adults, Intellectual Disability, Emotional Response, Discussion
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