Background: Views on social care related quality of life (SCRQol) are typically gathered directly from individuals or from proxy informants. Easy-read options are available, although such methods may not be accessible to those with greater communication challenges. Methods: Fifteen people with intellectual disabilities were interviewed about their…

Background: The aim was to explore the relationship between quality of active support and communication support for people in group homes with high and low support needs. Methods: Data from 182 service users, 20-81 years (mean = 40), 89 with high support needs, were observed to have either good (n = 142) or poor (n = 40) communication support.…

Background: Research into Rett syndrome has included various medical interventions. Non-medical interventions are relatively under-researched. Recent technological communication intervention advances have contributed to the evidence base in Rett syndrome. Method: The Embase, PsycINFO and MEDLINE were systematically searched for peer-reviewed…

Background: This investigation of children with Angelman syndrome (AS) examined reported uses of electronic augmentative and alternative communication (AAC) devices (i.e. VOCAs), including speech generating devices, in relation to other aided and unaided methods of communication. Materials and Method: A total of 122 parents of children with AS,…

Background: Project @pple (Access & Participation for People with intellectual disability in Learning Environments) was about exploring the terms on which young people with intellectual disability access and participate with e-Learning and the Web. The current study is one of a number of related studies. It explores the culture of information and…