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Direct linkCuskelly, Monica; Moni, Karen; McMahon, Mary; Jobling, Anne; Lloyd, Jan – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Person-centred service delivery underpins current approaches to working with individuals with intellectual disabilities. We investigated views of staff from a service organisation regarding their roles in creating desired futures for adults with intellectual disabilities. Methods: Data were gathered from staff of a large organisation…
Descriptors: Intellectual Disability, Employees, Role, Readiness
Marian E. J. Breuer; Esther J. Bakker-van Gijssel; Tim Pelle; Jenneken Naaldenberg; Geraline L. Leusink – Journal of Applied Research in Intellectual Disabilities, 2025
Background: This study aims to explore patients' and their caregivers' experiences with and expectations of a medical consultation with a specialised ID physician at an outpatient ID practice. Methods: Fifteen semi-structured interviews were conducted with patients and their caregivers. Interview topics concerned (1) ID physician's knowledge and…
Descriptors: Intellectual Disability, Specialization, Caregivers, Physician Patient Relationship
Redley, Marcus – Journal of Applied Research in Intellectual Disabilities, 2021
Background: Mealtime support has a direct bearing on the diet-related health of men and women with intellectual disabilities as well as opportunities for expressing dietary preferences. Method: Semi-structured interviews with a sample of direct support staff providing mealtime support to adults with intellectual disabilities. Results: When…
Descriptors: Adults, Intellectual Disability, Nutrition, Dietetics
Louise D. Denne; Gwenllian Moody; Elinor Coulman; David Gillespie; Kate Ingarfield; Nicholas Manktelow; Corinna F. Grindle; J. Carl Hughes; Zac Taylor; Richard P. Hastings – Journal of Applied Research in Intellectual Disabilities, 2025
Background: There is a paucity of research into interventions that help people with intellectual disabilities learn to read. This feasibility study examines whether an online reading programme, Headsprout, with additional support strategies and supervision (the intervention), can be delivered by support workers/family carers and the feasibility of…
Descriptors: Reading Skills, Reading Instruction, Intellectual Disability, Online Courses
Kelli A. Sanderson; Meghan M. Burke; Jennifer L. Bumble – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Many parents are the primary caregivers for their adult children with intellectual and/or developmental disabilities. While there can be many benefits of caregiving, there can also be negative consequences for the parent caregiver and, in turn, for their adult child with intellectual and/or developmental disabilities. Given the…
Descriptors: Adults, Children, Intellectual Disability, Developmental Disabilities
Monteiro, Rebeca Orselli; Tafla, Tally Lichtensztejn; Rodriguez, Juliana Dalla Martha; Teixeira, Sabine Triguero; Honjo, Rachel Sayuri; Kim, Chong Ae; Teixeira, Maria Cristina Triguero Veloz – Journal of Applied Research in Intellectual Disabilities, 2023
Background: The affective expression of sexual behaviour in individuals with Williams syndrome can lead to risky behaviours, especially if parents do not have information on how to provide sex education or support from specialised professionals. Method: The Attitudes to Sexuality Questionnaire for Individuals with Intellectual Disabilities was…
Descriptors: Sexuality, Genetic Disorders, Intellectual Disability, Parent Attitudes
Andrew Joyce; Perri Campbell; Jenny Crosbie; Erin Wilson – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Social enterprises have the potential to address some of the current barriers that people with an intellectual disability experience in transitioning to open employment opportunities. However, it is unknown in detail how social enterprises are able to facilitate this transition, which limits ability to scale-up these organisational…
Descriptors: Intellectual Disability, Organizational Communication, Institutional Characteristics, Business
Eke Bruinsma; Annelies A. de Bildt; Pieter J. Hoekstra; Gerda M. de Kuijper; Barbara J. van den Hoofdakker – Journal of Applied Research in Intellectual Disabilities, 2025
Background: We aimed to identify key factors in implementing and adhering to positive behaviour support (PBS), provided by frontline staff, targeting challenging behaviours of people with intellectual disabilities living in residential group homes. Method: Using semi-structured interviews with 12 frontline staff members, we collected perspectives…
Descriptors: Positive Behavior Supports, Behavior Problems, Intellectual Disability, Group Homes
Luitwieler, Nicole; Luijkx, Jorien; Stege, Heleen A.; Grootoonk, Anneke; Schans, Cees P.; Putten, Annette A. J.; Waninge, Aly – Journal of Applied Research in Intellectual Disabilities, 2024
Background: For families with adolescent children, the transition to adulthood is usually challenging. This period may be extra demanding for families with a child with profound intellectual and multiple disabilities due to the child's strong and persistent support needs. To support these families during this phase and to facilitate the transition…
Descriptors: Adolescents, Adolescent Development, Family Role, Severe Intellectual Disability
Maeve Goodall; Kate Irving; Mary Nevin – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Pain recognition and assessment in individuals with profound intellectual disabilities are challenging. Exploring effective methods of addressing this is essential. This study aims to discover current nursing practice in this area of care as the first of a four-phased appreciative inquiry study, to inform further research and practice.…
Descriptors: Pain, Severe Intellectual Disability, Nurses, Role
Dorsman, Naomi I.; Waninge, Aly; van der Schans, Cees P.; Luijkx, Jorien; Van der Putten, Annette A. J. – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Adult siblings are important in the lives of individuals with profound intellectual disabilities, especially as parents age. However, little is known about the roles they assume. Method: We examined these roles among 58 participants from the Netherlands, who completed an online questionnaire. Results: Most participants (89.7%) assumed…
Descriptors: Foreign Countries, Adults, Siblings, Severe Intellectual Disability
Sara Colaianni; Madison M. Walsh; Sara Onnivello; Miranda E. Pinks; Chiara Marcolin; Kaylyn Van Deusen; Elisa Rossi; Nathaniel R. Riggs; Francesca Pulina; Lisa Daunhauer; Deborah J. Fidler; Silvia Lanfranchi – Journal of Applied Research in Intellectual Disabilities, 2025
Background: People with Down syndrome (DS) are predisposed to challenges with executive functions (EF), which are crucial for adaptive outcomes and academic success. Early interventions targeting EF are therefore critical. The present study analysed Italian data on the acceptability, enjoyability and household implementation of EXPO (EXecutive…
Descriptors: Foreign Countries, Down Syndrome, Parent Role, Intervention
Deb, Shoumitro; Limbu, Bharati; Nancarrow, Tom; Gerrard, David; Shankar, Rohit – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Overprescribing of off-licence psychotropic medications, particularly antipsychotics, for challenging behaviours in people with intellectual disabilities without a psychiatric disorder is a significant public health concern. In the United Kingdom, the National Health Service England launched an initiative in 2016, 'STopping…
Descriptors: Foreign Countries, Psychiatry, Experience, Adults
Leclerc, Marie-Josée; Morin, Diane – Journal of Applied Research in Intellectual Disabilities, 2022
Background: For adults with intellectual disabilities living in a residential care facility, support staff, who are an integral part of their daily lives, can play an important role in supporting their sexuality. Even though multiple programmes exist, barriers remain when it comes to their application. This study aimed to identify factors…
Descriptors: Adults, Intellectual Disability, Residential Care, Employees
Kasper Kruithof; Erik Olsman; Dick Willems; Karin Volkers; Bas Kleijwegt; Appolonia Nieuwenhuijse – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Persons with profound intellectual and multiple disabilities (PIMD) increasingly outlive their parents. Therefore, we designed a structured group conversation to support family members and care professionals in exploring together how parental roles may be taken over by others when necessary. Method: We conducted a mixed methods study,…
Descriptors: Severe Intellectual Disability, Multiple Disabilities, Family Needs, Parent Role
