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Direct linkSien Vandesande; Evy Meys; Bea Maes – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Parents' decisions to use out-of-home support for children with intellectual disabilities significantly impact all family members, including siblings. However, siblings' perspectives on this transition to group homes remain underexplored. This study examines siblings' emotional experiences and changes in their personal and family lives…
Descriptors: Siblings, Children, Adolescents, Emotional Response
Luca Vascelli; Vanessa Artoni; Federica Berardo – Journal of Developmental and Physical Disabilities, 2023
Three adolescents with moderate to severe intellectual disabilities who attended a clinical setting participated in this study. The effects of repeated times practice for component skills on the emission frequency of composite daily living skills such as wearing a shirt, shoes, fastening buttons, and using an iPad were investigated. We practiced…
Descriptors: Psychomotor Skills, Daily Living Skills, Adolescents, Intellectual Disability
Igier, Suzanne; Valérie, Pennequin – Journal of Intellectual Disabilities, 2023
Background: Few studies have evaluated the explanatory factors of poor performance and the effects of context in adults with intellectual disabilities. The aim of this study is to assess the role of a familiar experimenter on their cognitive performance, well-being, metacognitive experiences, and social behaviors. Method: Participants with…
Descriptors: Adults, Intellectual Disability, Moderate Intellectual Disability, Severe Intellectual Disability
Peter E. Langdon; Magdalena M. Apanasionok; Emma Scripps; Alastair Barrowcliff; Asit Biswas; Karen Bunning; Cheryl Burbidge; Katherine Byron-Daniel; Alex Cookson; Sarah Croom; Malwina Filipczuk; David Gillespie; Richard P. Hastings; Andrew Jahoda; Rachel McNamara; Lawrence Patterson; Dheeraj Rai; Robyn Steward; Kylie M. Gray – Journal of Applied Research in Intellectual Disabilities, 2024
Background: The aim of this feasibility study was to adapt and model a behavioural intervention for anxiety with autistic adults with moderate to severe intellectual disabilities. Method: Twenty-eight autistic adults with moderate or severe intellectual disabilities, 37 carers, and 40 therapists took part in this single-group non-randomised…
Descriptors: Autism Spectrum Disorders, Adults, Severe Intellectual Disability, Moderate Intellectual Disability
Annamarie Elisabet Wyngaard; Catharina Jacoba Elizabeth Uys – Journal of Applied Research in Intellectual Disabilities, 2025
Background: When supporting learners with severe intellectual disabilities, teaching methods needs to be adapted. Vona du Toit Model of Creative Ability (VdTMoCA) aims to enhance participation and facilitate adaptive responses through targeted intervention principles. This study aimed to develop and evaluate the impact of an intervention programme…
Descriptors: Intellectual Disability, Independent Living, Severe Intellectual Disability, Students with Disabilities
Annemieke Hoogstad; Liesbeth Mevissen; Michelle Kraaij; Robert Didden – Journal of Mental Health Research in Intellectual Disabilities, 2024
Introduction: In persons with severe to moderate intellectual disability (SID), no valid and reliable diagnostic instrument is available to determine PTSD. In this study, a new instrument was evaluated: the Diagnostic Interview Trauma and Stressors -- Severe Intellectual Disability (DITS-SID). Methods: DITS-SID, Aberrant Behavior Checklist and…
Descriptors: Posttraumatic Stress Disorder, Adults, Intellectual Disability, Severe Intellectual Disability
Annemieke Hoogstad; Liesbeth Mevissen; Robert Didden – Journal of Developmental and Physical Disabilities, 2024
No research has been conducted on PTSD manifestation in children with severe or moderate intellectual disability (SID; IQ 20-49) and no PTSD measurement instrument was available. This pilot explores the psychometric properties of a new diagnostic instrument to investigate trauma and to classify PTSD in children with SID. The Diagnostic Interview…
Descriptors: Posttraumatic Stress Disorder, Children, Severe Intellectual Disability, Moderate Intellectual Disability
Diane Fox; Julie Beadle-Brown; Jill Bradshaw; Christine Bigby; Lisa Richardson – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Previous research identifies organisational culture as one of a number of factors associated with the quality of life outcomes of group home residents' with intellectual and developmental disabilities. This study aims to elaborate on the dimensions of group home culture in settings in England. Method: Participant observations and…
Descriptors: Intellectual Disability, Group Homes, Developmental Disabilities, Organizational Culture
M. L. Eding; M. Meeter; C. Schuengel – Journal of Research in Special Educational Needs, 2025
Education of children with moderate to severe intellectual disabilities requires adequate assessment of their educational needs and potential to learn. Dynamic testing using analogical reasoning tasks may be a promising way to perform such an assessment. However, it remains unclear how dynamic testing with these children may be done in practice.…
Descriptors: Delphi Technique, Moderate Intellectual Disability, Severe Intellectual Disability, Foreign Countries
Torsten Hammann; Jakob Valic; Gašper Slapnicar; Mitja Luštrek – International Journal of Developmental Disabilities, 2024
Introduction: The preferences of people with profound intellectual and multiple disabilities (PIMD) often remain unfulfilled since it stays challenging to decode their idiosyncratic behavior resulting in a negative impact on their quality of life (QoL). Physiological data (i.e. heart rate (variability) and motion data) might be the missing piece…
Descriptors: Psychological Patterns, Intellectual Disability, Comorbidity, Severe Intellectual Disability
Delany, C.; Diocera, M.; Lewin, J. – Journal of Intellectual & Developmental Disability, 2023
Background: People with intellectual disability who require cancer services face several barriers and inequities, including delayed or unrecognised cancer diagnosis and inadequate attention paid to their specific concerns, needs and preferences about care. Methods: In this case report, we present a case report of a 33-year-old male with severe…
Descriptors: Intellectual Disability, Cancer, Barriers, Access to Health Care
Edina Hanley; Caroline Dalton; Elaine Lehane; Anne-Marie Martin – British Journal of Learning Disabilities, 2025
Background: This study explores communication partners' perceptions of their roles and responsibilities in the design, planning and use of augmentative and alternative communication (AAC) with individuals with severe/profound intellectual disability. Methods: A qualitative descriptive approach was used. Purposive sampling, data collection and…
Descriptors: Interpersonal Communication, Augmentative and Alternative Communication, Severe Intellectual Disability, Role
Wieneke Penninga; Alexander H. C. Hendriks; Hedwig J. A. van Bakel; Petri J. C. M. Embregts – British Journal of Learning Disabilities, 2025
Background: Initiating meaningful moments of interaction with people with profound intellectual disabilities can prove to be difficult for support staff. Exploring the behaviour of support staff that precedes the initiations of behaviour by people with profound intellectual disabilities helps to shed light upon the potential facilitating effects…
Descriptors: Severe Intellectual Disability, Interpersonal Relationship, Verbal Communication, Nonverbal Communication
Sawako Furukawa; Nobutoshi Nawa; Yui Yamaoka; Takeo Fujiwara – Journal of Intellectual Disabilities, 2024
Background: People with intellectual disabilities (IDs) and their caregivers face difficulties during the COVID-19 pandemic. However, limited studies have comprehensively investigated their challenges, especially in Japan. We aimed to clarify the concerns and needs of people with IDs and their caregivers during the COVID-19 pandemic in Japan.…
Descriptors: Foreign Countries, Barriers, COVID-19, Pandemics
Overwijk, Annelies; van der Putten, Annette A. J.; van der Schans, Cees P.; Willems, Mariël; Hilgenkamp, Thessa I. M.; Waninge, Aly – Journal of Applied Research in Intellectual Disabilities, 2021
Background: Behaviour change techniques (BCTs) can be employed to support a healthy lifestyle for people with intellectual disabilities. The aim of this study is to determine whether and which BCTs are used by direct support professionals (DSPs) for supporting healthy lifestyle behaviour of people with moderate to profound intellectual…
Descriptors: Behavior Modification, Behavior Change, Health Promotion, Moderate Intellectual Disability
