Purpose: Access to research programs and increased diversity in research enrollment may be key to improving diverse populations' health and healthcare outcomes. To facilitate research recruitment, a Research Registry ("Registry"), a pre-recruitment database, was developed at an urban tertiary Autism Center ("Autism Center"). In…

In US anatomical gift law, the record on which a person consents to body donation after death is referred to as a document of gift (DG). Due to the lack of legal requirements around minimum information standards, enacted recommendations in the United States, and the unknown variation across extant DGs, a review of publicly-available DGs from US…

Body donation is a prosocial act providing a unique learning experience to students, ultimately impacting on patient care and science. With an increasing number of training professionals, there is an increasing need for body donors, yet little is understood about donors' beliefs and preferences. A four-center study aimed to understand donors'…

Linking survey and social media data has gained popularity. However, obtaining consent from respondents to link social media is a known challenge. Using data from a nationally representative survey of the U.K. this study investigated whether respondents' a) activity frequency, b) activity variety and c) technical skills with smartphones are…

Valid consent requires the potential research participant understands the information provided. We examined current practice in 50 proposed Clinical Trials of Investigational Medicinal Products to determine how this understanding is checked. The majority of the proposals (n = 44) indicated confirmation of understanding would take place during an…

As our modern world has become increasingly digitalized, various types of data from different data domains are available that can enrich survey data. To link survey data to other sources, consent from the survey respondents is required. This article compares consent to data linkage requests for seven data domains: administrative data, smartphone…

The identification procedure can greatly affect eyewitness performance, but this may be contingent upon a relatively weak memory for the perpetrator. In a large preregistered experiment (N = 13,728), we manipulated memory strength and tested participants with a target-present or -absent showup or lineup (size 3 or 6). All fillers were…

Transfer motivation is an important factor influencing transfer of training. However, earlier research often did not investigate transfer motivation as a multidimensional construct. The unified model of task-specific motivation (UMTM) takes into account that (transfer) motivation is multidimensional by including both affective and cognitive…

The management of human fetal and embryological collections presents an ethical challenge that can be explored from different perspectives, particularly when considering informed consent. The "micro ethics" level focuses on parties engaged in giving and receiving human tissue while the "macro ethics" level focusses on the…

Involving children as stakeholders and including their voices in updating the Australian Early Years Learning Framework (for children birth to age 5) was a focus of this project design. The design was grounded in participatory approaches with a children's rights perspective, as the team prioritised seeking children's views and encouraging their…

Research on involuntary autobiographical memories has made significant progress over the past two decades. One question in this area concerns whether involuntary memories are functional, or merely cognitive failures. Survey methods have been used to assess the question of involuntary memory functionality, but with mixed results, with some…

Past research indicates that people judge repeated statements as more true than new ones. An experiential consequence of repetition that may underly this "truth effect" is processing fluency: Processing statements feels easier following their repetition. In three preregistered experiments (N = 684), we examined the effect of merely…

Ethical reviews of research plans function as a cornerstone of good research practice in order that no harm should come to participants. Ethical concerns have taken on a new salience in a digital world where data can be generated at scale. Big data research has grown rapidly, raising increased ethical concerns. Several intersecting areas of big…

Previous studies have shown that the price of a given product impacts the perceived quality of such product. This finding was also observed in medical contexts, showing that expensive drugs increase the placebo effect compared to inexpensive ones. However, addressing a drug's efficacy requires making causal inferences between the drug and the…

Members of research ethics committees (RECs) face a number of ethical challenges when reviewing genomic research. These include issues regarding the content and type of consent, the return of individual research results, mechanisms of sharing specimens and health data, and appropriate community engagement efforts. This article presents the…