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Christine Bigby; Lincoln Humphreys – Journal of Applied Research in Intellectual Disabilities, 2024
Background: The strength of practice leadership predicts the quality of Active Support but it can be compromised by other demands on frontline managers. The study aimed to identify and understand differences in practice leadership over time and between organisations. Method: Data collected in 2022 in 96 services from 11 organisations using the…
Descriptors: Foreign Countries, Leadership Training, Literature Reviews, Organization
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Louise Rixon; Richard P. Hastings; Hanna Kovshoff – Journal of Applied Research in Intellectual Disabilities, 2025
Background: The impact of having a disabled brother or sister on siblings' psychological well-being and sibling relationships has been the subject of several research studies. However, research which focuses on the relationship between siblings and their autistic brother or sister with an intellectual disability and complex care needs is rare. We…
Descriptors: Autism Spectrum Disorders, Sibling Relationship, Children, Early Adolescents
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Madison M. Walsh; Kaylyn Van Deusen; Miranda E. Pinks; Benedetta Ceci; Susan Hepburn; Nathanial R. Riggs; Francesca Pulina; Chiara Marcolin; Sara Onnivello; Sara Colaianni; Bethany Gray; Lisa A. Daunhauer; Silvia Lanfranchi; Deborah J. Fidler – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Parent-mediated intervention (PMI) is a potentially scalable approach for tailored interventions in neurogenetic conditions like Down syndrome (DS). Because PMIs require ongoing parent engagement, they must be developed in alignment with the needs of intended users. The present study examined caregiver opinions and preferences to…
Descriptors: Parent Attitudes, Intervention, Young Children, Down Syndrome
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Sara Colaianni; Madison M. Walsh; Sara Onnivello; Miranda E. Pinks; Chiara Marcolin; Kaylyn Van Deusen; Elisa Rossi; Nathaniel R. Riggs; Francesca Pulina; Lisa Daunhauer; Deborah J. Fidler; Silvia Lanfranchi – Journal of Applied Research in Intellectual Disabilities, 2025
Background: People with Down syndrome (DS) are predisposed to challenges with executive functions (EF), which are crucial for adaptive outcomes and academic success. Early interventions targeting EF are therefore critical. The present study analysed Italian data on the acceptability, enjoyability and household implementation of EXPO (EXecutive…
Descriptors: Foreign Countries, Down Syndrome, Parent Role, Intervention