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Siblings' and Parents' Perspectives on the Future Care for Their Family Member with Profound Intellectual and Multiple Disabilities: A Qualitative Study
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Kruithof, Kasper; IJzerman, Lisa; Nieuwenhuijse, Appolonia; Huisman, Sylvia; Schippers, Alice; Willems, Dick; Olsman, Erik – Journal of Intellectual & Developmental Disability, 2021
Background: Since the life expectancy of people with profound intellectual and multiple disabilities (PIMD) is increasing, siblings may take over care/support roles from their parents. Method: To explore how parents and siblings of persons with PIMD view siblings' role regarding future care/support for their family member, we interviewed eight…
Descriptors: Severe Intellectual Disability, Multiple Disabilities, Siblings, Role
A Questionnaire to Measure Direct Support Professionals' Attitude towards Healthy Nutrition of People with Intellectual Disabilities
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Overwijk, A.; Krijnen, W. P.; Hilgenkamp, T. I. M.; van der Schans, C. P.; van der Putten, A. A. J.; Waninge, A. – Journal of Intellectual & Developmental Disability, 2023
Background: Direct support professionals' (DSPs') attitudes toward nutrition are important for supporting a healthy lifestyle of persons with intellectual disabilities. However, there are no instruments to measure it. The aim of this study was to compose a questionnaire and determine its internal validity. Method: The previously validated Health…
Descriptors: Nutrition, Allied Health Personnel, Attitudes, Life Style
Exploring How Support Workers Understand Their Role in Supporting Adults with Intellectual Disabilities to Access the Internet for Intimate Relationships
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Lines, Jason; Combes, Helen; Richards, Ruth – Journal of Applied Research in Intellectual Disabilities, 2021
Background: Some adults with intellectual disabilities need support to access the Internet. This study explores how support workers understand their role in facilitating Internet access for intimate relationships. Method: Eight support workers in the West Midlands of the UK were interviewed face-to-face, using semi-structured interviews and a…
Descriptors: Adults, Intellectual Disability, Internet, Caregiver Role
Hopes and Hurdles: Parents' Perceptions and Experiences with Transition Planning for Students with Intellectual Disabilities
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Jason Robinson; Tracy Gershwin Mueller – Journal of the American Academy of Special Education Professionals, 2020
The Individuals with Disabilities Education Act (IDEA) mandates parents' participation as a necessary component of providing an appropriate education to students with disabilities. Despite these guidelines, parents report challenges with joining and contributing to the individualized education program (IEP) team as equal and valuable educational…
Descriptors: Parent Attitudes, Individualized Transition Plans, Students with Disabilities, Intellectual Disability
Research Active Programme: A Pilot Inclusive Research Curriculum in Higher Education
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Salmon, Nancy; García Iriarte, Edurne; Burns, Emma Q. – International Journal of Research & Method in Education, 2017
Participation of people with disabilities in producing and using research is critical for monitoring the implementation of the United Nations Convention on the Rights of Persons with Disabilities (CRPD). The Research Active Programme (RAP) is a module designed to build research capacity of students with intellectual disabilities. RAP was…
Descriptors: Foreign Countries, Intellectual Disability, Capacity Building, Research Skills
Parents' Views of an Optimal School Life: Using Social Role Valorization to Explore Differences in Parental Perspectives When Children Have Intellectual Disability
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Mann, Glenys; Moni, Karen; Cuskelly, Monica – International Journal of Qualitative Studies in Education (QSE), 2016
Children with disability continue to experience disadvantage in their school lives; thus, the question of what makes up an optimal school life, and whether this is different for children with disability, becomes critical. This paper reports on research into parental views about an optimal school life and the usefulness of Social Role Valorization…
Descriptors: Disabilities, Parent Attitudes, Role, Social Theories