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'We Became Their Beginning, Their Middle and Their End'
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Michelle Murphy; Anne-Marie Martin – British Journal of Learning Disabilities, 2024
Background: Communicating with people with severe/profound intellectual disabilities is essential for person-centred, rights-based support. Despite a proliferation of research around COVID-19, there is a dearth of evidence exploring its impact on communication with people with severe/profound intellectual disabilities. This study aimed to explore…
Descriptors: COVID-19, Severe Intellectual Disability, Communication (Thought Transfer), Pandemics
Inventory of Assessment Practices in People with Profound Intellectual and Multiple Disabilities in Three European Countries
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Wessels, Marleen D.; van der Putten, Annette A. J.; Paap, Muirne C. S. – Journal of Applied Research in Intellectual Disabilities, 2021
Background: Knowledge about the quality of assessment methods used in the support of people with profound intellectual and multiple disabilities (PIMD) is scarce. This study aimed to provide an overview of the assessment methods used in practice and to examine whether these instruments were studied for their psychometric properties for people with…
Descriptors: Foreign Countries, Severe Intellectual Disability, Multiple Disabilities, Evaluation Methods
Support Needs of Families with a Child with Profound Intellectual and Multiple Disabilities
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Sim̩on T. A. Lahaije; Jorien Luijkx; Aly Waninge; Annette A. J. van der Putten РInternational Journal of Developmental Disabilities, 2024
Families with a child with profound intellectual and multiple disabilities (PIMD) have to manage the child's pervasive support needs. To ensure that families are able to manage these needs, they should be properly supported. However, knowledge about the specific support needs of these families is sparse and fragmented, nor is it known if and which…
Descriptors: Family Needs, Children, Severe Intellectual Disability, Multiple Disabilities
Siblings' and Parents' Perspectives on the Future Care for Their Family Member with Profound Intellectual and Multiple Disabilities: A Qualitative Study
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Kruithof, Kasper; IJzerman, Lisa; Nieuwenhuijse, Appolonia; Huisman, Sylvia; Schippers, Alice; Willems, Dick; Olsman, Erik – Journal of Intellectual & Developmental Disability, 2021
Background: Since the life expectancy of people with profound intellectual and multiple disabilities (PIMD) is increasing, siblings may take over care/support roles from their parents. Method: To explore how parents and siblings of persons with PIMD view siblings' role regarding future care/support for their family member, we interviewed eight…
Descriptors: Severe Intellectual Disability, Multiple Disabilities, Siblings, Role
Robust Receptive Vocabulary Instruction for Students with Significant Cognitive Disabilities Who Use AAC
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Geist, Lori; Erickson, Karen – TEACHING Exceptional Children, 2022
Robust vocabulary instruction is an important part of comprehensive English language arts (ELA) instruction. Vocabulary instruction supports students in learning the meaning of words to build a receptive vocabulary that they can rely on to comprehend the words they read and hear. Many students with significant cognitive disabilities (SCD) and…
Descriptors: Vocabulary Development, Students with Disabilities, Severe Intellectual Disability, Receptive Language
Physicians' Perceptions on Quality of Life of Persons with Profound Intellectual and Multiple Disabilities: A Qualitative Study
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Nieuwenhuijse, Appolonia M.; Willems, Dick L.; Olsman, Erik – Journal of Intellectual & Developmental Disability, 2020
Background: Quality of Life (QoL) may be a factor in physicians' decisions on treatment of persons with Profound Intellectual and Multiple Disabilities (PIMD). We explored the perception of physicians on the QoL of persons with PIMD. Method: We conducted semi-structured interviews with seven experienced physicians treating persons with PIMD,…
Descriptors: Physicians, Attitudes, Quality of Life, Severe Intellectual Disability
State Spotlights: Reducing AA-AAAS State-Level Participation Rates to Meet the 1.0% Threshold, 2016-17 to 2017-18. NCEO Report 421
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Strunk, Kathy; Thurlow, Martha L.; Arner, Justin – National Center on Educational Outcomes, 2020
The 2015 reauthorization of the Every Student Succeeds Act (ESSA) placed a state-level 1.0% threshold on student participation in the alternate assessment based on alternate academic achievement standard (AA-AAAS). ESSA also stipulated that state education agencies (SEAs) may not impose on any local educational agency (LEA) a cap on the percentage…
Descriptors: Student Participation, Alternative Assessment, Academic Achievement, Academic Standards
Increasing Day Service Staff Capacity to Facilitate Positive Relationships with People with Severe Intellectual Disability: Evaluation of a New Intervention Using Multiple Baseline Design
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Johnson, Hilary; Bigby, Christine; Iacono, Teresa; Douglas, Jacinta; Katthagen, Sarah; Bould, Emma – Journal of Intellectual & Developmental Disability, 2017
Background: The social relationships model was developed to describe positive relationships between support staff and people with intellectual disability. We evaluated an educational intervention based on this model. Method: Eighteen staff supporting 5 adult service users with severe or profound intellectual disability from 3 day services received…
Descriptors: Interpersonal Relationship, Caregivers, Adults, Severe Intellectual Disability
A Preliminary Investigation of the Suitability of Aquatics for People with Severe and Profound Intellectual Disabilities
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Aherne, Cian; Coughlan, Barry – Journal of Intellectual Disabilities, 2017
Background: Aquatics is an under-researched but possibly appropriate form of activity for people with severe to profound intellectual disabilities (SPIDs). Aim: The current pilot study investigates the suitability of an aquatics programme for service users with SPIDs. Method: Four service users with SPID completed an 8-12-session aquatics…
Descriptors: Severe Intellectual Disability, Aquatic Sports, Physical Activities, Caregivers
Improving the Organizational Process and Creating a Community-Based Program Design for Adults with Intellectual Disabilities
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Hatley, Issac – Online Submission, 2016
The purpose of the Doctoral Capstone project was to examine the effects of a community-based program on adults with disabilities. For many years, individuals with disabilities have been socially excluded from the community for many years. Individuals with scholarly handicaps are unequally defenseless against social rejection, destitution and abuse…
Descriptors: Community Programs, Adult Education, Self Esteem, Quality of Life