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Direct linkRogers, Julie M.; Weaver, Amy L.; Havyer, Rachel D. – American Journal on Intellectual and Developmental Disabilities, 2022
Down syndrome (DS) research is advancing rapidly, yet efforts have raised ethical questions. This mixed methods study describes views of people with DS (self-advocates) and their parents regarding medical interventions for DS. Responses from 35/171 (20.5%) self-advocates and 430/867 (49.6%) parents showed the majority of self-advocates were glad…
Descriptors: Down Syndrome, Intervention, Self Concept, Parent Attitudes
