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Exploring Communication Ability in Individuals with Angelman Syndrome: Findings from Qualitative Interviews with Caregivers
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Zigler, Christina K.; Lucas, Nicole; McFatrich, Molly; Gordon, Kelly L.; Jones, Harrison N.; Berent, Allyson; Panagoulias, Jennifer; Evans, Paula; Reeve, Bryce B. – American Journal on Intellectual and Developmental Disabilities, 2023
Communication deficits have a substantial impact on quality of life for individuals with Angelman syndrome (AS) and their families, but limited qualitative work exists to support the necessary content of measures aiming to assess communication for these individuals. Following best practices for concept elicitation studies, we conducted individual…
Descriptors: Genetic Disorders, Communication Skills, Caregivers, Children
Parenting Young Children with and without Fragile X Syndrome
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Sterling, Audra; Barnum, Leah; Skinner, Debra; Warren, Steven F.; Fleming, Kandace – American Journal on Intellectual and Developmental Disabilities, 2012
The purpose of this study was to examine maternal parenting styles across age-matched siblings using a within-family design, in which one child has Fragile X syndrome. Thirteen families participated; children were aged 16 to 71 months. Mothers completed several videotaped activities with each child separately as well as an interview. Mothers used…
Descriptors: Siblings, Mothers, Parenting Styles, Child Rearing