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Daily Living Skills in Adolescent and Young Adult Males with Fragile X Syndrome
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Thurman, Angela John; Swinehart, Stephanie Summers; Klusek, Jessica; Roberts, Jane E.; Bullard, Lauren; Marzan, Jocelyn Christina B.; Brown, W. Ted; Abbeduto, Leonard – American Journal on Intellectual and Developmental Disabilities, 2022
By adulthood, most males with fragile X syndrome (FXS) require support to navigate day-to-day settings. The present study cross-sectionally: (1) characterized the profile of daily living skills in males with FXS and (2) examined associated participant characteristics (i.e., fragile X mental retardation protein [FMRP] expression, nonverbal…
Descriptors: Genetic Disorders, Daily Living Skills, Males, Adolescents
Later Life Impacts of Social Participation on Parents of Adult Offspring with and without Intellectual and Developmental Disabilities
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Olsen, Darren L. – American Journal on Intellectual and Developmental Disabilities, 2018
Social participation is an important resource for parents in old age, and may be particularly important for parents living with adult offspring with intellectual and developmental disabilities. To evaluate whether socializing with friends and family and participating in social organizations protects against depression in old age, this study…
Descriptors: Parents, Older Adults, Adults, Intellectual Disability
Multimorbidity and Polypharmacy Are Independently Associated with Mortality in Older People with Intellectual Disabilities: A 5-Year Follow-Up from the HA-ID Study
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Schoufour, Josje D.; Oppewal, Alyt; van der Maarl, Hanne J. K.; Hermans, Heidi; Evenhuis, Heleen M.; Hilgenkamp, Thessa I. M.; Festen, Dederieke A. – American Journal on Intellectual and Developmental Disabilities, 2018
We studied the association between multimorbidity, polypharmacy, and mortality in 1,050 older adults (50+) with intellectual disability (ID). Multimorbidity (presence of = 4 chronic health conditions) and polypharmacy (presence = 5 chronic medication prescriptions) were collected at baseline. Multimorbidity included a wide range of disorders,…
Descriptors: Correlation, Older Adults, Intellectual Disability, Chronic Illness
Predictors Associated with Paid Employment Status of Community and Technical College Students with Intellectual Disability
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Qian, Xueqin; Johnson, David R.; Smith, Frank A.; Papay, Clare K. – American Journal on Intellectual and Developmental Disabilities, 2018
The present study sought to identify predictors associated with paid employment outcomes for community and technical college students with intellectual disability (ID). Data used were collected from the Transition and Postsecondary Programs for Students With Intellectual Disabilities (TPSID) implemented in two community and technical colleges in…
Descriptors: Intellectual Disability, Two Year College Students, Two Year Colleges, Predictor Variables
Attendance at Fragile X Specialty Clinics: Facilitators and Barriers
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Kidd, Sharon A.; Raspa, Melissa; Clark, Renée; Usrey-Roos, Holly; Wheeler, Anne C.; Liu, Jessica A.; Wylie, Amanda; Sherman, Stephanie L. – American Journal on Intellectual and Developmental Disabilities, 2017
The objectives were to describe the demographic characteristics of children with Fragile X syndrome (FXS) and to determine predictors of attendance at Fragile X (FX) clinics. Findings from the Community Support Network (CSN) and Our Fragile X World (OFXW) samples showed that children who attended FX Clinics were mostly male, high-school aged or…
Descriptors: Genetic Disorders, Predictor Variables, Individual Characteristics, Participation