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Consensus on High-Priority Outcomes to Be Used in the Evaluation of Services for Autistic Adults: Results from a "CBPR-Nested Delphi Process"
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Christina Nicolaidis; Mirah Scharer; Dora M. Raymaker; Joseph Vera; Todd Edwards; Ian Moura; Mary Baker-Ericzén; Joelle Maslak; Liu-Qin Yang; Rachel Kripke-Ludwig; Steven K. Kapp; Andrea Joyce; Anna Wallington; Academic Autism Spectrum Partnership in Research and Education (AASPIRE) Outcomes Project Team – Autism: The International Journal of Research and Practice, 2025
People are increasingly recognizing the need for service interventions to improve the lives of autistic adults. However, less is known about how to best evaluate such services. We aimed to identify (1) which self-reported outcomes are most important to measure when evaluating the effectiveness of services for autistic adults and (2) what survey…
Descriptors: Autism Spectrum Disorders, Adults, Program Evaluation, Intervention
Feasibility and Preliminary Efficacy of Behavioral Activation for Treatment of Depression in Autistic Adolescents
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Michelle Menezes; Christina Burroughs; Jessica Pappagianopoulos; Eleonora Sadikova; Emily Fuhrmann; Genevieve Bohac; Robert Cross; Lauren Witte; Gabrielle Brinkmann; Rachel Lemley; Denis G. Sukhodolsky; Micah O. Mazurek – Autism: The International Journal of Research and Practice, 2024
Depression is common among autistic youth and is associated with worse quality of life in this group. Despite significant need for high-quality efficacious treatments, there has been very limited research on interventions for depression in autistic youth. This single-arm pilot study examined the feasibility and preliminary efficacy of a novel,…
Descriptors: Behavior Modification, Outcomes of Treatment, Depression (Psychology), Autism Spectrum Disorders
Assessing Early Implementation of State Autism Insurance Mandates
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Baller, Julia Berlin; Barry, Colleen L.; Shea, Kathleen; Walker, Megan M.; Ouellette, Rachel; Mandell, David S. – Autism: The International Journal of Research and Practice, 2016
In the United States, health insurance coverage for autism spectrum disorder treatments has been historically limited. In response, as of 2015, 40 states and Washington, DC, have passed state autism insurance mandates requiring many health plans in the private insurance market to cover autism diagnostic and treatment services. This study examined…
Descriptors: Autism, Pervasive Developmental Disorders, Program Implementation, Program Evaluation
The Development, Feasibility and Acceptability of Empower-Autism: A New Psychoeducational and Psychotherapeutic Programme for Caregivers of Children Recently Diagnosed with Autism
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Kathy Leadbitter; Louisa Harrison; Sophie Langhorne; Ceri Ellis; Richard Smallman; Amelia Pearson; Latha Hackett; Leo Kroll; Alison Dunkerley; Hilary Beach; June Gilbert; Amy van Gils; Tessa Hutton; Jonathan Green; Penny Bee; REACH-ASD Team – Autism: The International Journal of Research and Practice, 2025
Caregivers can experience significant challenges following their child's autism diagnosis and often seek informational, relational and emotional support. Post-diagnostic support for caregivers has received relatively little research attention and represents a significant gap in the international evidence base. We used an iterative codesign process…
Descriptors: Foreign Countries, Autism Spectrum Disorders, Parents, Caregivers
Telehealth Delivery of Cognitive-Behavioral Intervention to Youth with Autism Spectrum Disorder and Anxiety: A Pilot Study
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Hepburn, Susan L.; Blakeley-Smith, Audrey; Wolff, Brian; Reaven, Judy A. – Autism: The International Journal of Research and Practice, 2016
Youth with autism spectrum disorders frequently experience significant symptoms of anxiety. Empirically supported psychosocial interventions exist, yet access is limited, especially for families in rural areas. Telehealth (i.e. videoconferencing) has potential to reduce barriers to access to care; however, little is known about the feasibility or…
Descriptors: Autism, Pervasive Developmental Disorders, Anxiety Disorders, Health Promotion