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Deborah Quilgars; Eppie Leishman; David Abbott; Samantha Clarke; Becca Cooper; Stephen Hodgkins; Paul Scarrott; Andy Pollin; Lois Beech – British Journal of Learning Disabilities, 2024
Background: Policy, research, and people's own experience in the UK consistently highlight the central importance of a home of choice for people with learning disabilities. Yet attention is mainly focused on the development of specialist as opposed to generic housing options for people with learning disabilities. Methods: This article reviews the…
Descriptors: Learning Disabilities, Foreign Countries, Housing, Attitudes
Ledger, Sue; McCormack, Noelle; Walmsley, Jan; Tilley, Elizabeth; Davies, Ian – British Journal of Learning Disabilities, 2022
In this paper, the authors review life stories in learning disability research and practice since the 1960s. Although there is consistent evidence of their value in giving people a voice and an identity beyond the service label, they are not widely used in the provision of health and social care. This is despite long-standing policy commitments to…
Descriptors: Biographies, Learning Disabilities, Barriers, Labeling (of Persons)
Gray, Ben; Kerridge, Tom – British Journal of Learning Disabilities, 2023
Background: People with learning disabilities are often left behind and ostracised in life, education, employment and in research. This article describes the importance and value that people with learning disabilities can bring when participating in co-production and lived experience research. The article reports on the inequalities and barriers…
Descriptors: Learning Disabilities, Experience, Access to Health Care, Barriers
Kate Sykes; Grant J. McGeechan; Emma L. Giles – British Journal of Learning Disabilities, 2024
Background: Women with learning disabilities are less likely to access cervical and breast cancer screening when compared to the general population. The Social Ecological Model (SEM) was used to examine the inequalities faced by women with learning disabilities in accessing cervical and breast cancer screening in England, UK. Methods: The findings…
Descriptors: Foreign Countries, Females, Learning Disabilities, Cancer
Castro, María Gómez-Carrillo; Palazuelos, Adela; Corona, Adrián; Sánchez, Ángela; Alises, Gema; Sancho, Marta; Cauja, Paola; Sanz, Víctor – British Journal of Learning Disabilities, 2023
Background: This paper describes the experience of conducting a co-researched project with people with learning disabilities in Madrid, Spain, during the COVID pandemic and lockdown. I discuss the advantages and limitations of working online and challenges encountered while coordinating and facilitating the research. Methods: Our research project…
Descriptors: Participatory Research, Learning Disabilities, Videoconferencing, Foreign Countries
Chris Hatton; Richard P. Hastings; Sue Caton; Jill Bradshaw; Andrew Jahoda; Rosemary Kelly; Roseann Maguire; Edward Oloidi; Laurence Taggart; Stuart Todd; The Coronavirus and People with Learning Disabilities Study Team – British Journal of Learning Disabilities, 2024
Background: During the COVID-19 pandemic in the United Kingdom, many health services were withdrawn from people with learning disabilities, with negative impacts on people's health. What has happened to people's health and healthcare as we move beyond the pandemic? Methods: Access to health services and health status were tracked for 550 UK adults…
Descriptors: Learning Disabilities, COVID-19, Pandemics, Foreign Countries
Seale, Jane – British Journal of Learning Disabilities, 2023
Background: The aim of this study was to examine whether and how people with learning disabilities were being supported to use technologies to keep connected and stay well during the pandemic. Methods: Thirty-eight people in a range of support roles were interviewed about their experiences of trying to support people with learning disabilities to…
Descriptors: COVID-19, Pandemics, Inclusion, Accessibility (for Disabled)
Marek Karas; Donna O'Brien; Lance Campbell; Rebecca Lunness; Joanne Kennedy; Grace McGill; Stephen Kill; Lisa Donaldson – British Journal of Learning Disabilities, 2024
Background: Documented inequalities in access to eye care for people with learning disabilities and/or autism are caused by poor uptake of primary eye care services, poor identification of eye problems, lack of signposting and reasonable adjustments of existing services, concerns about costs of care and the low priority historically given to these…
Descriptors: Access to Health Care, Autism Spectrum Disorders, Intellectual Disability, Learning Disabilities
Nicola Cooper-Moss; Katie Umpleby; Christina Roberts; Christie Garner; Aisha Hazel Edwards; Nicola Ditzel; Jabeer Butt; Samantha Clark; Christopher Hatton; Umesh Chauhan – British Journal of Learning Disabilities, 2025
Background: People with a learning disability from ethnic minorities experience barriers in their access to healthcare services and poorer health outcomes. This study aimed to explore the factors that contribute to these barriers and to better understand how they can be reduced. Methods: Twenty 'experts by experience' took part in experience-based…
Descriptors: Barriers, Access to Health Care, Health Services, Learning Disabilities
Holden, Ben; Lee, Andrew – British Journal of Learning Disabilities, 2022
Background: Individuals with diabetes and a learning disability have poorer health outcomes than those without a learning disability. In the UK, the health inequalities faced by people with learning disabilities are often the result of barriers they face in accessing timely, appropriate and effective health care. The aim of the study was to review…
Descriptors: Barriers, Affordances, Diabetes, Health Services
Haythorne, Rebecca; Gega, Lina; Knapp, Peter; Crawford, Hannah – British Journal of Learning Disabilities, 2022
Background: Active recreation denotes engagement with meaningful and rewarding activities that can improve physical and mental well-being for everyone; however, there are specific challenges to participation in active recreation for people with learning disabilities. Aim: To understand what hinders and what enables participation in active…
Descriptors: Recreational Activities, Learning Disabilities, Participation, Barriers
Ross, Helen; Dodds, Nicola – British Journal of Learning Disabilities, 2023
Background: There are few identified risk factors that may contribute to the increased risk of hospital admission for children and young people with intellectual disabilities. This qualitative study aimed to identify the key risk factors that precipitate admissions to Tier 4 child and adolescent mental health services (CAMHS) inpatient services…
Descriptors: Children, Adolescents, Learning Disabilities, Hospitalized Children
Francesca Beeken; Dafni Katsampa; Moureen Duxbury; Helen-Ellis Caird; Annabel Head; Sam Prowse; David Wellsted; Pashtana Zormati; Silvana E. Mengoni; Louisa Rhodes – British Journal of Learning Disabilities, 2024
Background: People with learning disabilities experience health and social inequalities, and research that could improve health services may not be implemented in real-life settings. Building stakeholder networks that can share and implement research findings may address this. This paper presents a framework for building a stakeholder network that…
Descriptors: Learning Disabilities, Access to Health Care, Health Services, Knowledge Level
Jess Mannion; Lori B. Vincent; Stephen D. Kroeger; Tricia Blee; Oisin Daly; Rhena Gallagher; Bryan Higgins; Mairead McHugh; Kerri Wolfer; Brittany E. Hayes – British Journal of Learning Disabilities, 2025
Introduction: The Relationships and Sexuality Research Team consists of researchers with learning disabilities who specialise in research on sexual citizenship and use visual and creative research methods. They are collaborating with academics on an innovative, cross-national, interdisciplinary and co-produced research project that brings together…
Descriptors: Foreign Countries, Interpersonal Relationship, Sexuality, Researchers
Synne Nese Skarsaune – British Journal of Learning Disabilities, 2024
Background: Persons with profound and multiple learning disabilities (PMLD) risk exclusion, both in research and as members of society. Because of their embodied communication, they face the challenges in being understood. Oftentimes, others speak on their behalf making inferences on what their perspective might be. Methods: Empathy is suggested…
Descriptors: Severe Disabilities, Multiple Disabilities, Learning Disabilities, Adults
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