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Esther Murphy; Orla Shiels; Sara Fiori; Darren McCausland; Helena Bergström; Raphael Koster; Hanna Noorlandt; Ida Korfage; Eva Flygare Wallén – British Journal of Learning Disabilities, 2025
Background: Developments in digital technologies have transformed how people interact with the world, offering employment, education, communication, health benefits and entertainment. Research has shown that not everyone can easily access digital content, particularly people with intellectual disabilities. Despite internet access being recognised…
Descriptors: Well Being, Inclusion, Access to Internet, Disadvantaged
Michelle Iffland; Mikaela Jorgensen; Donna Gillies – British Journal of Learning Disabilities, 2024
Background: People with intellectual disabilities are at much higher risk of preventable deaths compared to the general community. However, studies identifying the cause of death in people with intellectual disability are generally based on one primary cause which is frequently attributed to the person's disability. Therefore, the aim of this…
Descriptors: Foreign Countries, Intellectual Disability, Learning Disabilities, Death
Roy Deveau; Georgina Rickard – British Journal of Learning Disabilities, 2024
Background: As practice leaders, frontline managers observe staff working, provide feedback and use organisational structures to improve staff skills and focus on service-user quality of life. This qualitative study explored the experiences and barriers for frontline managers providing practice leadership to staff in community services for adults…
Descriptors: Barriers, Leadership Training, Community Services, Adults
Zaagsma, Miriam; Koning, Mark H. M.; Volkers, Karin M.; Schippers, Alice P.; van Hove, Geert – British Journal of Learning Disabilities, 2023
Background: Professional support for people with intellectual disabilities is increasingly delivered remotely. Understanding what support workers do to support people with intellectual disabilities remotely, and how they do this, is therefore important. The purpose of this study was to gain insight into the remote support practice of the support…
Descriptors: Intellectual Disability, Foreign Countries, Services, Employees
Eileen Kelleher; Maria Caples; Teresa Wills; Anne-Marie Martin – British Journal of Learning Disabilities, 2025
Background: Individuals with intellectual disabilities often require various supports in their everyday lives. Many access both acute and intellectual disability services depending on their needs. Previous research has highlighted suboptimal experiences of care provided in acute services. Joint working between both services has been recognised as…
Descriptors: Health Services, Intellectual Disability, Allied Health Personnel, Access to Health Care
Hannah Casey; Deirdre Desmond; Laura Coffey – British Journal of Learning Disabilities, 2024
Background: Supported decision-making may increase self-determination among adults with intellectual disabilities by encouraging and empowering them to make decisions about their lives to the greatest extent possible. The aim of this study was to explore the perceptions and experiences of mothers of adults with intellectual disabilities in Ireland…
Descriptors: Decision Making, Self Determination, Adults, Intellectual Disability
Jennifer Jackson; Jessica Sinyor; Hayley Trower – British Journal of Learning Disabilities, 2024
Background: The hospital or health passport is widely acknowledged as a central element in making reasonable adjustments for patients with intellectual disabilities. Historically, the health passport has been used exclusively for patients with intellectual disabilities; however, it has wider applications for any patient requiring additional…
Descriptors: Intellectual Disability, Individual Characteristics, Barriers, Communication Strategies
Michelle Murphy; Anne-Marie Martin – British Journal of Learning Disabilities, 2024
Background: Communicating with people with severe/profound intellectual disabilities is essential for person-centred, rights-based support. Despite a proliferation of research around COVID-19, there is a dearth of evidence exploring its impact on communication with people with severe/profound intellectual disabilities. This study aimed to explore…
Descriptors: COVID-19, Severe Intellectual Disability, Communication (Thought Transfer), Pandemics
Robinson, Sally; Carnemolla, Phillippa; Lay, Kiri; Kelly, Jack – British Journal of Learning Disabilities, 2022
Background: Local governments play an important role in supporting people with intellectual disability to feel included in their local communities and local-level inclusion is an increasing priority for councils and local authorities in many countries. However, people with intellectual disability themselves have had little involvement in setting…
Descriptors: Foreign Countries, Intellectual Disability, Local Government, Inclusion
Lam, Angus; Yau, Matthew K.; Franklin, Richard C.; Leggat, Peter A. – British Journal of Learning Disabilities, 2023
Background: This qualitative study explored the attitudes and experiences of Hong Kong Chinese parents/carers relating to the sexual needs of their child with intellectual disabilities. Methods: Semi-structured interviews were conducted in Hong Kong with seven parents/carers applying Interpretative Phenomenological Analysis to explore their…
Descriptors: Parent Attitudes, Sexuality, Children, Intellectual Disability
Rushton, Rosie; Kossyvaki, Lila; Terlektsi, Emmanouela – British Journal of Learning Disabilities, 2023
Background: Inclusive research advocates for the involvement of people with intellectual disabilities to be more than passive participants within the research process. Methods: This study used a participatory design with proxies to consult with 13 people with profound intellectual and multiple disabilities, on their musical preferences. Four…
Descriptors: Music, Music Appreciation, Preferences, Severe Intellectual Disability
Erin L. Whittle; Karen Fisher; Preeyaporn Srasuekbul; Julian Trollor – British Journal of Learning Disabilities, 2024
Background: Current evidence indicates that intellectual disability and gender are both factors in differential usage of services. However, there are limited data about the demographic and service usage patterns of people with intellectual disability who use mental health services. This is particularly true in relation to women with intellectual…
Descriptors: Females, Mental Health, Clinical Diagnosis, Profiles
Carey, Eileen; Foran, Sinéad; Burke, Geraldine; Ryan, Judy – British Journal of Learning Disabilities, 2023
Background: Globally there are few countries facilitating undergraduate programmes to train nurses specifically to support people with intellectual disabilities. In Ireland, eight Higher Education Institutions (HEIs) in partnership with associated health care providers (AHCPs) facilitate undergraduate Nursing (Intellectual Disability) degree…
Descriptors: Foreign Countries, Undergraduate Study, Nursing Education, Nurses
Elizabeth Smith; Petroc Sumner; Georgina Powell – British Journal of Learning Disabilities, 2025
Background: There is a need for more qualitative research focusing on the lived experiences of people with an intellectual disability and a better understanding of how these experiences align with other voices in their lives, such as family and support staff. Methods: In this qualitative study, we asked people with an intellectual disability (N =…
Descriptors: Adults, Intellectual Disability, Experience, Group Homes
Gerda de Kuijper; Josien Jonker; Rory Sheehan; Angela Hassiotis – British Journal of Learning Disabilities, 2024
Background: In people with intellectual disabilities and mental disorders and/or challenging behaviours, rates of psychotropic drug prescription are high. In clinical treatments and evaluations, all stakeholders should be involved in a process of shared decision-making (SDM). We aimed to investigate the perspectives of clients and their carers on…
Descriptors: Foreign Countries, Intellectual Disability, Drug Use, Physician Patient Relationship