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Sarah Earle; Susan Ledger; Victoria Newton; Lorna Rouse; Elizabeth Tilley – British Journal of Learning Disabilities, 2024
Background: Across the life course, women and girls with learning disabilities and their carers report difficulties in accessing information and support with menstruation, yet their experiences are often overlooked in initiatives to improve menstrual health and wellbeing. Our aim was to collaborate with women with learning disabilities to…
Descriptors: Foreign Countries, Females, Learning Disabilities, Physiology
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Cameron, Harriet; Cooper, Louise – British Journal of Learning Disabilities, 2021
Background: This small study explores the lived experience of four UK-based fathers (one black British, one white Polish and two white British) caring for at least one child with a dual diagnosis of learning disability and autism. The key aim was to get as close as possible to understanding the experience of these fathers in their role as carers.…
Descriptors: Fathers, Child Caregivers, Caregiver Role, Parent Child Relationship
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Nicola Cooper-Moss; Katie Umpleby; Christina Roberts; Christie Garner; Aisha Hazel Edwards; Nicola Ditzel; Jabeer Butt; Samantha Clark; Christopher Hatton; Umesh Chauhan – British Journal of Learning Disabilities, 2025
Background: People with a learning disability from ethnic minorities experience barriers in their access to healthcare services and poorer health outcomes. This study aimed to explore the factors that contribute to these barriers and to better understand how they can be reduced. Methods: Twenty 'experts by experience' took part in experience-based…
Descriptors: Barriers, Access to Health Care, Health Services, Learning Disabilities
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Turnpenny, Agnes; Rand, Stacey; Whelton, Beckie; Beadle-Brown, Julie; Babaian, Jacinta – British Journal of Learning Disabilities, 2021
Background: There are a growing number of people with learning disabilities and autism who access personal budgets in the form of direct payments in England. Although they are often involved in decisions about their support, personal budgets are usually managed by someone else, typically a parent. This study examined the experiences of carers who…
Descriptors: Caregivers, Money Management, Budgets, Adults
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Haythorne, Rebecca; Gega, Lina; Knapp, Peter; Crawford, Hannah – British Journal of Learning Disabilities, 2022
Background: Active recreation denotes engagement with meaningful and rewarding activities that can improve physical and mental well-being for everyone; however, there are specific challenges to participation in active recreation for people with learning disabilities. Aim: To understand what hinders and what enables participation in active…
Descriptors: Recreational Activities, Learning Disabilities, Participation, Barriers
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Ross, Helen; Dodds, Nicola – British Journal of Learning Disabilities, 2023
Background: There are few identified risk factors that may contribute to the increased risk of hospital admission for children and young people with intellectual disabilities. This qualitative study aimed to identify the key risk factors that precipitate admissions to Tier 4 child and adolescent mental health services (CAMHS) inpatient services…
Descriptors: Children, Adolescents, Learning Disabilities, Hospitalized Children
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Christina Roberts; Nicola Ditzel; Nicola Cooper-Moss; Katie Umbleby; Umesh Chauhan – British Journal of Learning Disabilities, 2025
Background: People with a learning disability face health inequality. Those from ethnic minority backgrounds with a learning disability face 'double discrimination' as members of two marginalised groups. Methods: This codesigned review consolidated the evidence on the healthcare experiences of individuals and their carers from ethnic minority…
Descriptors: Health Services, Access to Health Care, Learning Disabilities, Cultural Background
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Fish, Rebecca; Morgan, Hannah – British Journal of Learning Disabilities, 2021
Background: Despite repeated policy initiatives, an enduring number of people with learning disabilities remain resident in secure settings (also referred to as locked wards). The spatial and emotional distance from family and friends means that relationships with staff become central to people's lives, and are critical for a successful transition…
Descriptors: Interpersonal Relationship, Social Support Groups, Learning Disabilities, Residential Care
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Thornton, Victoria; Williamson, Rachel; Cooke, Bronwen – British Journal of Learning Disabilities, 2017
Background: Mindfulness is becoming increasingly reported as an effective way to support well-being and reduce mental health difficulties. Materials and Methods: This study reports on the development and pilot of a mindfulness-based group for young people with learning disabilities and their carers. Results: Group participants reported that the…
Descriptors: Metacognition, Youth, Learning Disabilities, Pilot Projects
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Firth, Graham; Glyde, Megan; Denby, Gemma – British Journal of Learning Disabilities, 2021
Background: This study looked to investigate the sometimes conscious and sometimes intuitive decision-making processes of Intensive Interaction practitioners. More specifically, this study set out to develop a rich description of how practitioners make judgements when developing a dynamic repertoire of Intensive Interaction strategies with people…
Descriptors: Decision Making, Residential Care, Allied Health Personnel, Speech Language Pathology
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Deville, Jane; Davies, Helen; Kane, Ros; Nelson, David; Mansfield, Paul – British Journal of Learning Disabilities, 2019
Background: There are a significant number of adults with a learning disability who live with and are cared for by their parents. There is a pressing need for interventions to support older parent carers with their role and to plan for a time when they can no longer continue caring. This article reports on the experiences of older parent carers…
Descriptors: Parents, Older Adults, Parent Child Relationship, Adults
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Chapman, Melanie; Lacey, Huma; Jervis, Nicola – British Journal of Learning Disabilities, 2018
Background: Dementia prevalence rates are higher amongst people with learning disabilities than the general population. People with Down's syndrome are at even greater risk of developing dementia and of developing dementia at an earlier age. This study, conducted as part of a wider service evaluation, explored community learning disability team…
Descriptors: Learning Disabilities, Dementia, Program Evaluation, Screening Tests
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Cluley, Victoria – British Journal of Learning Disabilities, 2018
Background: The term "intellectual disability" is increasingly used to refer to people with learning disabilities in British learning disability policy, practice and research. This change is undoubtedly a reflection of the changing international context. The inclusion of the term "intellectual disability" has been particularly…
Descriptors: Foreign Countries, Learning Disabilities, Intellectual Disability, Definitions
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Rayner, Kelly; Bradley, Samantha; Johnson, Gemma; Mrozik, Jennifer H.; Appiah, Afua; Nagra, Maninder K. – British Journal of Learning Disabilities, 2016
The engagement of people with learning disabilities in social communication is crucial to the development of relationships with others, a sense of social inclusion and self-worth. Intensive Interaction is an approach that can help carers develop their skills to engage people with severe and profound learning disabilities in personally relevant…
Descriptors: Communities of Practice, Caregiver Training, Interaction, Training Methods
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Dick, Katie; Gleeson, Kate; Johnstone, Lucy; Weston, Clive – British Journal of Learning Disabilities, 2011
Staff beliefs about self-harm can influence staff responses to the behaviour. Existing research into staff beliefs about self-harm by people with learning disabilities is limited, with qualitative research restricted to forensic services. The aim of this study was to use Q-methodology to explore staff beliefs about why people with learning…
Descriptors: Qualitative Research, Mental Retardation, Learning Disabilities, Self Destructive Behavior
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