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Hard to Reach, or Struggling to Be Heard? Real-Life Experience of Coproduction with People with Learning Disabilities
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David Dobel-Ober; Paul Moloney; Sarah Millichap – British Journal of Learning Disabilities, 2024
Background: Coproduction is a fast-developing approach to patient involvement. It entails health and social care services users working as equals in partnership with providers and other public institutions to produce novel research and information, usually aimed at the improvement of service planning and delivery. Methods: This paper presents two…
Descriptors: Foreign Countries, Males, Learning Disabilities, Health Services
Health and Healthcare of People with Learning Disabilities in the United Kingdom through the COVID-19 Pandemic
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Chris Hatton; Richard P. Hastings; Sue Caton; Jill Bradshaw; Andrew Jahoda; Rosemary Kelly; Roseann Maguire; Edward Oloidi; Laurence Taggart; Stuart Todd; The Coronavirus and People with Learning Disabilities Study Team – British Journal of Learning Disabilities, 2024
Background: During the COVID-19 pandemic in the United Kingdom, many health services were withdrawn from people with learning disabilities, with negative impacts on people's health. What has happened to people's health and healthcare as we move beyond the pandemic? Methods: Access to health services and health status were tracked for 550 UK adults…
Descriptors: Learning Disabilities, COVID-19, Pandemics, Foreign Countries
What Are the Experiences of Families Facilitating the Repatriation of Their Relatives with Learning Disabilities and/or Autism Back to Guernsey?
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Rebecca Wallace; Julian Morris; Melanie Hodgkinson – British Journal of Learning Disabilities, 2024
Background: Recent Government guidelines have promoted returning people with learning disabilities and/or autism from out-of-area placements to their local communities. These transitions not only impact the individuals but also their families. Methods: This study explores the experiences of family members who have been involved in the repatriation…
Descriptors: Learning Disabilities, Autism Spectrum Disorders, Transitional Programs, Geographic Location
Barriers to Healthcare for People with a Learning Disability from Ethnic Minorities: Perspectives of Self-Advocates and Carers
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Nicola Cooper-Moss; Katie Umpleby; Christina Roberts; Christie Garner; Aisha Hazel Edwards; Nicola Ditzel; Jabeer Butt; Samantha Clark; Christopher Hatton; Umesh Chauhan – British Journal of Learning Disabilities, 2025
Background: People with a learning disability from ethnic minorities experience barriers in their access to healthcare services and poorer health outcomes. This study aimed to explore the factors that contribute to these barriers and to better understand how they can be reduced. Methods: Twenty 'experts by experience' took part in experience-based…
Descriptors: Barriers, Access to Health Care, Health Services, Learning Disabilities
Expressive Touch in Health and Social Care: A Review of Touch Guidance to Explore the Extent to Which Social and Communication Needs of Adults with Learning Disabilities Are Considered
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Collett, Zoe; Moll, Deborah; Colston, Amanda; McKim, Jules; Elsworth, Julie – British Journal of Learning Disabilities, 2023
Background: People with a learning disability can present with complex physical and social needs, and sometimes rely on touch for communication. Historically, touch-related staff guidance has been described as risk-averse, lacking an evidence base, control-orientated and potentially harmful. This project reviews local touch-related guidance from…
Descriptors: Tactual Perception, Health Services, Social Services, Interpersonal Communication
Barriers and Enablers to Optimal Diabetes Care for Adults with Learning Disabilities: A Systematic Review
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Holden, Ben; Lee, Andrew – British Journal of Learning Disabilities, 2022
Background: Individuals with diabetes and a learning disability have poorer health outcomes than those without a learning disability. In the UK, the health inequalities faced by people with learning disabilities are often the result of barriers they face in accessing timely, appropriate and effective health care. The aim of the study was to review…
Descriptors: Barriers, Affordances, Diabetes, Health Services
Co-Producing Ethics Guidelines Together with People with Learning Disabilities
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Mary Bottomley; Jodie Bradley; Lisa Clark; Bryan Collis; Bojana Daw Srdanovic; Victoria Farnsworth; Annie Ferguson; Dan Goodley; Andrew Fox; Nikita K. Hayden; Charlotte Lawthom; Rebecca Lawthom; Claudia Magwood; Robert McLean; Ian Middleton; Alison Owen; Matty Prothero; Simon Rice; Simon Richards; Katherine Runswick-Cole; Kelly Scargill; Rohit Shankar; Toni Ann Wood – British Journal of Learning Disabilities, 2024
Background: We are a research team of clinical, academic and advocacy-based researchers with and without learning disabilities, working on the "Humanising Healthcare" (for people with learning disabilities) project. The project is dedicated to finding and sharing healthcare practices that enhance the lives of people with learning…
Descriptors: Ethics, Learning Disabilities, Guidelines, Researchers
Culturally Adaptive Healthcare for People with a Learning Disability from an Ethnic Minority Background: A Qualitative Synthesis
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Christina Roberts; Nicola Ditzel; Nicola Cooper-Moss; Katie Umbleby; Umesh Chauhan – British Journal of Learning Disabilities, 2025
Background: People with a learning disability face health inequality. Those from ethnic minority backgrounds with a learning disability face 'double discrimination' as members of two marginalised groups. Methods: This codesigned review consolidated the evidence on the healthcare experiences of individuals and their carers from ethnic minority…
Descriptors: Health Services, Access to Health Care, Learning Disabilities, Cultural Background
Mapping Stakeholders to Maximise the Impact of Research on Health Inequalities for People with Learning Disabilities: The Development of a Framework for the Making Positive Moves Study
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Francesca Beeken; Dafni Katsampa; Moureen Duxbury; Helen-Ellis Caird; Annabel Head; Sam Prowse; David Wellsted; Pashtana Zormati; Silvana E. Mengoni; Louisa Rhodes – British Journal of Learning Disabilities, 2024
Background: People with learning disabilities experience health and social inequalities, and research that could improve health services may not be implemented in real-life settings. Building stakeholder networks that can share and implement research findings may address this. This paper presents a framework for building a stakeholder network that…
Descriptors: Learning Disabilities, Access to Health Care, Health Services, Knowledge Level
Exploring the Views of UK Regional Primary Care Practitioners on the Use and Role of Screening Tools for Learning Disabilities in Their Services
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McKenzie, Karen; Wigham, Sarah; Bourne, Jane; Rowlands, Gill; Hackett, Simon – British Journal of Learning Disabilities, 2023
Background: People with learning disabilities are at increased risk of physical health conditions and mortality compared to the general population. Initiatives to address these health inequalities include the introduction of learning disability registers, through which people with learning disabilities can be identified and offered annual health…
Descriptors: Primary Health Care, Physical Health, Learning Disabilities, Social Differences
The Experiences of Adults with Intellectual Disability in the Involvement of Nursing Care Planning in Health Services
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Doody, Owen; Lyons, Rosemary; Ryan, Ruth – British Journal of Learning Disabilities, 2019
Background: Adults with intellectual disability should be involved in decision-making about their care. However, little is known regarding their experience of engaging in care planning within health services. In a rapidly changing healthcare environment, the relevance and necessity of demonstrating care delivered and care outcomes is essential for…
Descriptors: Adults, Intellectual Disability, Nursing, Health Services
Do Health Consultations for People with Learning Disabilities Meet Expectations? A Narrative Literature Review
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Chapman, Hazel M.; Lovell, Andrew; Bramwell, Ros – British Journal of Learning Disabilities, 2018
Background: Health consultations are an interpersonal activity that influence health outcomes and attitudes towards self and health professionals for people with learning disabilities. Annual health checks have been introduced to improve health inequalities for people with learning disabilities. Method: A narrative literature review of health care…
Descriptors: Learning Disabilities, Health Services, Health Needs, Outcome Measures
Mental Health Services for Children and Adolescents with Learning Disabilities: A Review of Research on Experiences of Service Users and Providers
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Jacobs, Myrthe; Downie, Helen; Kidd, Gill; Fitzsimmons, Lorna; Gibbs, Susie; Melville, Craig – British Journal of Learning Disabilities, 2016
Background: Children and young people with learning disabilities experience high rates of mental health problems. Methods: The present study reviewed the literature on mental health services for children with learning disabilities, to identify known models of service provision and what has been experienced as effective or challenging in providing…
Descriptors: Adolescents, Children, Mental Health, Health Services
Bespoke STOMP Training for Learning Disability Teams--Does It Work?
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Nancarrow, Thomas; Rencher, Joshua; Wilcock, Mike; Bonell, Simon; Wolke, Tony; Shankar, Rohit – British Journal of Learning Disabilities, 2019
Background: Intellectual disability (ID) is associated with polypharmacy particularly off-label psychotropics for "challenging behaviour." NHS England introduced the "stopping over medication of people with a learning disability (LD), autism or both" (STOMP) initiative. As ID services are a professionally diverse group, it is…
Descriptors: Intellectual Disability, Learning Disabilities, Correlation, Drug Therapy
Improving Services for People with Learning Disabilities and Dementia: Findings from a Service Evaluation Exploring the Perspectives of Health and Social Care Professionals
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Chapman, Melanie; Lacey, Huma; Jervis, Nicola – British Journal of Learning Disabilities, 2018
Background: Dementia prevalence rates are higher amongst people with learning disabilities than the general population. People with Down's syndrome are at even greater risk of developing dementia and of developing dementia at an earlier age. This study, conducted as part of a wider service evaluation, explored community learning disability team…
Descriptors: Learning Disabilities, Dementia, Program Evaluation, Screening Tests
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