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Dominic Fitzpatrick; Richard Parker – British Journal of Learning Disabilities, 2025
Background: Children and young people (CYP) with severe or profound and multiple learning disabilities are more likely to experience difficulties engaging for long periods. Finding ways to facilitate their engagement is crucial in promoting their social and emotional development and their mental well-being, particularly as they are more vulnerable…
Descriptors: Literature Reviews, Learning Disabilities, Severe Intellectual Disability, Multiple Disabilities
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Synne Nese Skarsaune – British Journal of Learning Disabilities, 2024
Background: Persons with profound and multiple learning disabilities (PMLD) risk exclusion, both in research and as members of society. Because of their embodied communication, they face the challenges in being understood. Oftentimes, others speak on their behalf making inferences on what their perspective might be. Methods: Empathy is suggested…
Descriptors: Severe Disabilities, Multiple Disabilities, Learning Disabilities, Adults
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Cameron, Harriet; Cooper, Louise – British Journal of Learning Disabilities, 2021
Background: This small study explores the lived experience of four UK-based fathers (one black British, one white Polish and two white British) caring for at least one child with a dual diagnosis of learning disability and autism. The key aim was to get as close as possible to understanding the experience of these fathers in their role as carers.…
Descriptors: Fathers, Child Caregivers, Caregiver Role, Parent Child Relationship
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Cluley, Victoria – British Journal of Learning Disabilities, 2017
Background: It is now expected that projects addressing the lives of people with learning disabilities include people with learning disabilities in the research process. In the past, such research often excluded people with learning disabilities, favouring the opinions of family members, carers and professionals. The inclusion of the voices of…
Descriptors: Photography, Social Action, Learning Disabilities, Multiple Disabilities
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Phelvin, Andrew – British Journal of Learning Disabilities, 2013
This paper describes the current challenges facing nurses and other professionals who care for people with profound and multiple intellectual disabilities. This particularly vulnerable group of service users often rely on a repertoire of non-verbal behaviours to communicate their needs and wishes. These challenges include the requirements of…
Descriptors: Intuition, Verbal Ability, Multiple Disabilities, Mental Retardation
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Boxall, Kathy; Ralph, Sue – British Journal of Learning Disabilities, 2011
Although there is increasing interest in service user involvement in research, such involvement rarely extends to people with profound and multiple learning disabilities. New developments in visual methodologies offer the potential for people with profound and multiple learning disabilities to be included in research. At the same time, however,…
Descriptors: Committees, Multiple Disabilities, Learning Disabilities, Ethics
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Moss, Lucy; Smith, Melanie; Wharton, Sarah; Hames, Annette – British Journal of Learning Disabilities, 2008
Chronic constipation is a common problem in people with learning disabilities. Treatment often involves dietary changes or long-term laxative use. The participants were five children with profound learning disabilities and additional physical difficulties. Their long-standing idiopathic constipation was managed by laxatives. Intervention lasted up…
Descriptors: Intervention, Learning Disabilities, Case Studies, Children
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Leaning, Brian; Watson, Tessa – British Journal of Learning Disabilities, 2006
This paper describes the use of a new project, "from the inside looking out" (FILO) (N. Richardson Unpublished data), to develop communication, interaction and emotional literacy skills with people with profound and multiple learning disabilities. The authors utilized tools derived from Intensive Interaction Therapy [D. Hewett & M. Nind (1994)…
Descriptors: Learning Disabilities, Emotional Intelligence, Multiple Disabilities, Group Dynamics