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Co-Producing Ethics Guidelines Together with People with Learning Disabilities
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Mary Bottomley; Jodie Bradley; Lisa Clark; Bryan Collis; Bojana Daw Srdanovic; Victoria Farnsworth; Annie Ferguson; Dan Goodley; Andrew Fox; Nikita K. Hayden; Charlotte Lawthom; Rebecca Lawthom; Claudia Magwood; Robert McLean; Ian Middleton; Alison Owen; Matty Prothero; Simon Rice; Simon Richards; Katherine Runswick-Cole; Kelly Scargill; Rohit Shankar; Toni Ann Wood – British Journal of Learning Disabilities, 2024
Background: We are a research team of clinical, academic and advocacy-based researchers with and without learning disabilities, working on the "Humanising Healthcare" (for people with learning disabilities) project. The project is dedicated to finding and sharing healthcare practices that enhance the lives of people with learning…
Descriptors: Ethics, Learning Disabilities, Guidelines, Researchers
Value, Vulnerability and Voice: An Integrative Review on Research Assent
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Hart, Sarah M.; Pascucci, Mikayla; Sood, Sheetal; Barrett, Emily M. – British Journal of Learning Disabilities, 2020
(1.1) Background: Research assent is a term used with those deemed vulnerable, for whom modifications and additional considerations are required when requesting their voluntary agreement to participate in research. (1.2) Methods: The authors' research experiences and inclusive research principles were integrated with a review of literature on…
Descriptors: Informed Consent, Severe Intellectual Disability, Sampling, Research Methodology
Applying the Mental Capacity Act to Research with People with Learning Disabilities
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Jepson, Marcus – British Journal of Learning Disabilities, 2015
This study describes the experiences of a researcher negotiating consent with people with learning disabilities to become participants in a research study. The study was about how the Mental Capacity Act (MCA) was applied to everyday decision-making in social care settings. However, before data collection could begin, the researcher had to follow…
Descriptors: Mental Retardation, Decision Making, Legislation, Data Collection