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Direct linkBarabash, Tori; Ouellette-Kuntz, Hélène; Martin, Lynn – Journal of Applied Research in Intellectual Disabilities, 2021
Background: Study of frailty in adults with intellectual and developmental disabilities (IDD) is relatively new. To build the body of literature, an international consensus statement on how to support adults with IDD as they become frail was developed based on fictional cases. This study examined the face validity and applicability of the…
Descriptors: Adults, Intellectual Disability, Developmental Disabilities, Aging (Individuals)
Taylor, Whitney D.; Cobigo, Virginie; Ouellette-Kuntz, Hélène – Journal of Applied Research in Intellectual Disabilities, 2019
Background: This study explored the way families support self-determination in young adults with intellectual and developmental disabilities (IDD) during life transitions. Method: Qualitative case studies were conducted with two Canadian families who participated in semi-structured interviews and ethnographic observations every quarter for one…
Descriptors: Family Involvement, Self Determination, Young Adults, Intellectual Disability
Ouellette-Kuntz, Hélène; Martin, Lynn; Burke, Eilish; McCallion, Philip; McCarron, Mary; McGlinchey, Eimear; Sandberg, Magnus; Schoufour, Josje; Shooshtari, Shahin; Temple, Bev – Journal of Applied Research in Intellectual Disabilities, 2019
Background: While higher rates and earlier onset of frailty have been reported among adults with intellectual and developmental disabilities (IDD), research on how best to support these individuals is lacking. Method: An international consultation relied on three consensus building methods--the Nominal Group Technique, an NIH consensus conference…
Descriptors: Intellectual Disability, Best Practices, Aging (Individuals), Safety
Robinson, Suzanne; Weiss, Jonathan A.; Lunsky, Yona; Ouellette-Kuntz, Hélène – Journal of Applied Research in Intellectual Disabilities, 2016
Background: Parents often play a lifelong role in supporting their sons and daughters with intellectual and/or developmental disabilities (IDD). There is a need to better understand parent resources, particularly when the individual with IDD has behaviour problems, as the latter has consistently been linked to parental burden. Methods: The current…
Descriptors: Intellectual Disability, Developmental Disabilities, Correlation, Parent Role
McKenzie, Katherine; Ouellette-Kuntz, Hélène; Blinkhorn, Ashleigh; Démoré, Ashley – Journal of Applied Research in Intellectual Disabilities, 2017
Background: The transition period out of the educational system can be a source of stress for parents of young adults with intellectual and developmental disabilities, as families lose the support and respite offered by schools. Materials and Methods: Using a before and after design nested within a 24-month follow-up study of parents seeking adult…
Descriptors: Young Adults, Developmental Disabilities, Transitional Programs, Intellectual Disability
Ouellette-Kuntz, Hélène; Shooshtari, Shahin; Balogh, Robert; Martens, Patricia – Journal of Applied Research in Intellectual Disabilities, 2015
Background: This paper reviews what is currently known about mortality among Canadians with intellectual and developmental disabilities and describes opportunities for ongoing monitoring. Methods: In-hospital mortality among adults with intellectual and developmental disabilities in Ontario was examined using hospital data. Mortality was compared…
Descriptors: Foreign Countries, Mental Retardation, Developmental Disabilities, Mortality Rate
