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A Scoping Review of the Evidence for the Use of Screening Tools in People with Intellectual Disabilities with Dysphagia
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O'Leary, Lisa; Maine, Andrew; Ring, Nicola; Reid, James; Speirs, Lorraine; Allan, Louise; Truesdale, Maria; Taggart, Laurence – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Dysphagia can have serious health implications including choking and respiratory infection leading to poorer quality of life. People with intellectual disabilities are at higher risk of dysphagia related health complications and early death. Robust dysphagia screening tools are vital for this population. Method: A scoping review and…
Descriptors: Physical Disabilities, Eating Disorders, Intellectual Disability, Screening Tests
Comparison of the Presence and Absence of an Intervention to Reduce Hand Stereotypies in Individuals with Rett Syndrome
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Hirano, Daisuke; Goto, Yoshinobu; Shoji, Hiroaki; Taniguchi, Takamichi – Journal of Applied Research in Intellectual Disabilities, 2022
Background: We investigated how many individuals with Rett syndrome were undergoing interventions to reduce stereotypic hand movements and the factors determining the presence or absence of an intervention. Method: A questionnaire was sent to 194 families. Each survey item was compared between the intervention and non-intervention groups according…
Descriptors: Genetic Disorders, Behavior Problems, Intervention, Age Differences
Assessing the Reliability and Validity of a Health-Related Quality of Life Instrument, CPADULT, in a Dutch Sample of Adults with Severe Disabilities Who Are Non-Ambulatory
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Zalmstra, Trees A. L.; Reinders-Messelink, Heleen A.; Elema, Agnes; Van Gils, Willemijn; Van Der Sluis, Corry K.; Van Der Putten, Annette A. J. – Journal of Applied Research in Intellectual Disabilities, 2024
Background: A measure to provide insight regarding health-related quality of life of adults with severe motor and intellectual disabilities was lacking. For this reason, the CPADULT was developed. This measure includes domains relating to an individual's physical, mental, and social functioning. The purpose of this study was to assess the…
Descriptors: Test Validity, Test Reliability, Quality of Life, Adults
Factors Associated with Non-Completion of and Scores on Physical Capability Tests in Health Surveys: The North Health in Intellectual Disability Study
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Olsen, Monica Isabel; Halvorsen, Marianne Berg; Søndenaa, Erik; Strand, Bjørn Heine; Langballe, Ellen Melbye; Årnes, Anders; Michalsen, Henriette; Larsen, Frode Kibsgaard; Gamst, Wenche; Bautz-Holter, Erik; Anke, Audny – Journal of Applied Research in Intellectual Disabilities, 2022
Background: This study investigated the completion rates, scores and factors associated with non-completion and low scores on physical capability tests in a health survey administered to adults with intellectual disabilities. Method: Assessment comprised body mass index (BMI), the Short Physical Performance Battery (SPPB), the timed up-and-go…
Descriptors: Adults, Intellectual Disability, Physical Fitness, Tests
Development and Sensibility Assessment of a Health-Related Quality of Life Instrument for Adults with Severe Disabilities Who Are Non-Ambulatory
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Zalmstra, Trees A. L.; Elema, Agnes; van Gils, Willemijn; Reinders-Messelink, Heleen A.; van der Sluis, Corry K.; van der Putten, Annette A. J. – Journal of Applied Research in Intellectual Disabilities, 2021
Background: Insight in health-related quality of life (HRQoL) of adults with severe disabilities who are non-ambulatory is important, but a measure is lacking. The aim was to develop a HRQoL measure for this group. Method: The developmental process consisted of the adaptation process of a proxy HRQoL measure for children with severe disabilities…
Descriptors: Quality of Life, Adults, Severe Disabilities, Physical Disabilities
'We Can't Do It Alone': Perceived Social Support in Parents of Children with a Significant Cognitive and Motor Developmental Delay
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Van Keer, Ines; Van Leeuwen, Karla; Maes, Bea – Journal of Applied Research in Intellectual Disabilities, 2022
Background: It is generally acknowledged that parent social support is an important target for intervention. To explore the specific needs of parents of young children with a significant cognitive and motor developmental delay (SDD), we aim to chart the sources and perceived sufficiency of the social support they receive. Method: Within the…
Descriptors: Parent Attitudes, Social Support Groups, Intellectual Disability, Developmental Delays