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O'Leary, Lisa; Maine, Andrew; Ring, Nicola; Reid, James; Speirs, Lorraine; Allan, Louise; Truesdale, Maria; Taggart, Laurence – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Dysphagia can have serious health implications including choking and respiratory infection leading to poorer quality of life. People with intellectual disabilities are at higher risk of dysphagia related health complications and early death. Robust dysphagia screening tools are vital for this population. Method: A scoping review and…
Descriptors: Physical Disabilities, Eating Disorders, Intellectual Disability, Screening Tests
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Hirano, Daisuke; Goto, Yoshinobu; Shoji, Hiroaki; Taniguchi, Takamichi – Journal of Applied Research in Intellectual Disabilities, 2022
Background: We investigated how many individuals with Rett syndrome were undergoing interventions to reduce stereotypic hand movements and the factors determining the presence or absence of an intervention. Method: A questionnaire was sent to 194 families. Each survey item was compared between the intervention and non-intervention groups according…
Descriptors: Genetic Disorders, Behavior Problems, Intervention, Age Differences
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Zalmstra, Trees A. L.; Reinders-Messelink, Heleen A.; Elema, Agnes; Van Gils, Willemijn; Van Der Sluis, Corry K.; Van Der Putten, Annette A. J. – Journal of Applied Research in Intellectual Disabilities, 2024
Background: A measure to provide insight regarding health-related quality of life of adults with severe motor and intellectual disabilities was lacking. For this reason, the CPADULT was developed. This measure includes domains relating to an individual's physical, mental, and social functioning. The purpose of this study was to assess the…
Descriptors: Test Validity, Test Reliability, Quality of Life, Adults
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Olsen, Monica Isabel; Halvorsen, Marianne Berg; Søndenaa, Erik; Strand, Bjørn Heine; Langballe, Ellen Melbye; Årnes, Anders; Michalsen, Henriette; Larsen, Frode Kibsgaard; Gamst, Wenche; Bautz-Holter, Erik; Anke, Audny – Journal of Applied Research in Intellectual Disabilities, 2022
Background: This study investigated the completion rates, scores and factors associated with non-completion and low scores on physical capability tests in a health survey administered to adults with intellectual disabilities. Method: Assessment comprised body mass index (BMI), the Short Physical Performance Battery (SPPB), the timed up-and-go…
Descriptors: Adults, Intellectual Disability, Physical Fitness, Tests
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Zalmstra, Trees A. L.; Elema, Agnes; van Gils, Willemijn; Reinders-Messelink, Heleen A.; van der Sluis, Corry K.; van der Putten, Annette A. J. – Journal of Applied Research in Intellectual Disabilities, 2021
Background: Insight in health-related quality of life (HRQoL) of adults with severe disabilities who are non-ambulatory is important, but a measure is lacking. The aim was to develop a HRQoL measure for this group. Method: The developmental process consisted of the adaptation process of a proxy HRQoL measure for children with severe disabilities…
Descriptors: Quality of Life, Adults, Severe Disabilities, Physical Disabilities
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Van Keer, Ines; Van Leeuwen, Karla; Maes, Bea – Journal of Applied Research in Intellectual Disabilities, 2022
Background: It is generally acknowledged that parent social support is an important target for intervention. To explore the specific needs of parents of young children with a significant cognitive and motor developmental delay (SDD), we aim to chart the sources and perceived sufficiency of the social support they receive. Method: Within the…
Descriptors: Parent Attitudes, Social Support Groups, Intellectual Disability, Developmental Delays