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Increased Life Expectancy of People with Profound Intellectual and Multiple Disabilities: What Does It Change for Parents?
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Karine Baumstarck; Sibylle Del Duca; Houria El Ouazzani; Ilyes Hamouda; Any Beltran Anzola; Marie-Anastasie Aim; Marie-Christine Rousseau – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Advancements in medicine have increased the life expectancy of the people with profound intellectual and multiple disabilities. The hypothesis is that as parents get older, they worry about no longer being there for their child. This paper explores the extent to which the experiences of older parents may differ from that of younger…
Descriptors: Quality of Life, Severe Disabilities, Multiple Disabilities, Intellectual Disability
Informal Social Networks of People with Profound Intellectual and Multiple Disabilities: Relationship with Age, Communicative Abilities and Current Living Arrangements
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Kamstra, A.; van der Putten, A. A. J.; Post, W. J.; Vlaskamp, C. – Journal of Applied Research in Intellectual Disabilities, 2015
Background: People with profound intellectual and multiple disabilities (PIMD) have limited informal social contacts. Research to determine the factors which can positively influence establishing sound informal social contacts is required. Materials and Methods: Regression analysis for 200 people with PIMD was used to analyse how age,…
Descriptors: Social Networks, Severe Mental Retardation, Multiple Disabilities, Regression (Statistics)
Multi-Sensory Storytelling for Persons with Profound Intellectual and Multiple Disabilities: An Analysis of the Development, Content and Application in Practice
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ten Brug, Annet; van der Putten, Annette; Penne, Anneleen; Maes, Bea; Vlaskamp, Carla – Journal of Applied Research in Intellectual Disabilities, 2012
Background: Multi-sensory storytelling (MSST) books are individualized stories, which involve sensory stimulation in addition to verbal text. Despite the frequent use of MSST in practice, little research is conducted into its structure, content and effectiveness. This study aims at the analysis of the development, content and application in…
Descriptors: Severe Mental Retardation, Multiple Disabilities, Story Telling, Books
The Content of Support of Persons with Profound Intellectual and Multiple Disabilities: An Analysis of the Number and Content of Goals in the Educational Programmes
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van der Putten, Annette; Vlaskamp, Carla; Poppes, Petra – Journal of Applied Research in Intellectual Disabilities, 2009
Background: This study focuses on the support of persons with profound intellectual and multiple disabilities (PIMD) by analysing the number and content of formulated goals in the educational programmes. Methods: The programmes of 145 persons with PIMD were analysed. The number of long- and short-term goals as well as the number of goals reached…
Descriptors: Multiple Disabilities, Goal Orientation, Interaction, Severe Mental Retardation
Patterns of Obesity among Children and Adolescents with Intellectual Disabilities in Taiwan
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Lin, Jin-Ding; Yen, Chia-Feng; Li, Chi-Wei; Wu, Jia-Ling – Journal of Applied Research in Intellectual Disabilities, 2005
Background: Obesity and the health problems associated with it have substantial economic consequences for health care systems. Little information is available concerning obesity-related problems among people with intellectual disabilities. The aims of this study were to analyse patterns of obesity among children and adolescents with intellectual…
Descriptors: Physical Health, Severity (of Disability), Obesity, Body Composition
Domains of Quality of Life of People with Profound Multiple Disabilities: The Perspective of Parents and Direct Support Staff
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Petry, Katja; Maes, Bea; Vlaskamp, Carla – Journal of Applied Research in Intellectual Disabilities, 2005
Background: This study considered the general validity of the basic domains of quality of life that appear in theoretical models, in relation to people with profound multiple disabilities. The authors examined how parents and direct support staff operationalized these basic domains for people with profound multiple disabilities. They investigated…
Descriptors: Health Promotion, Multiple Disabilities, Severe Disabilities, Severe Mental Retardation