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Looking Back, Looking Forward: Methodological Challenges and Future Directions in Research on Persons with Profound Intellectual and Multiple Disabilities
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Maes, Bea; Nijs, Sara; Vandesande, Sien; Van keer, Ines; Arthur-Kelly, Michael; Dind, Juliane; Goldbart, Juliet; Petitpierre, Geneviève; Van der Putten, Annette – Journal of Applied Research in Intellectual Disabilities, 2021
Background: Within the context of the Special Interest Research Group (SIRG) on Persons with Profound Intellectual and Multiple Disabilities (PIMD), researchers often discuss the methodological problems and challenges they are confronted with. The aim of the current article was to give an overview of these challenges. Methods: The challenges are…
Descriptors: Severe Intellectual Disability, Multiple Disabilities, Research Methodology, Barriers
Community Participation of Families of Children with Profound Intellectual and Multiple Disabilities in South Africa
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McKenzie, Judith Anne; Kahonde, Callista; Mostert, Karen; Aldersey, Heather Michelle – Journal of Applied Research in Intellectual Disabilities, 2021
Background: Families struggle to support family members with profound intellectual and multiple disabilities (PIMD), especially in low resourced settings where formal services may not be available. Method: The adapted Family Community Participation survey, measuring perceptions of community participation, was administered to 67 primary caregivers…
Descriptors: Family Involvement, Family Needs, Community Services, Child Caregivers
Stakeholder-Driven Approach to Developing a Peer-Mentoring Intervention for Young Adults with Intellectual/Developmental Disabilities and Co-Occurring Mental Health Conditions
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Schwartz, Ariel E.; Kramer, Jessica M.; Rogers, E. Sally; McDonald, Katherine E.; Cohn, Ellen S. – Journal of Applied Research in Intellectual Disabilities, 2020
Background: Young adults with intellectual/developmental disabilities and co-occurring mental health conditions (IDD-MH) experience significant mental health disparities. Barriers to services include transportation and stigma associated with services. Peer mentoring (PM) may be one solution to these barriers. Methods: We conducted exploratory…
Descriptors: Mentors, Intervention, Program Development, Peer Relationship