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Direct linkLauren T. Ptomey; Kelli Barton; Emma Swinford; Amy Bodde; Amanda George; Anna M. Gorczyca; C. Michelle Niedens; Susan C. Sprague; Amy Yeager; Brian Helsel; Linda Teri; Eric D. Vidoni; Jaime Perales-Puchalt – Journal of Applied Research in Intellectual Disabilities, 2024
Background: The Reducing Disability in Alzheimer's Disease in Kansas City (RDAD-KC) intervention has been shown to improve the health of individuals with dementia and caregiver dyads. This manuscript reports the results of implementing the RDAD among individuals with intellectual disabilities and caregiver dyads. Methods: Nine community agencies…
Descriptors: Alzheimers Disease, Intervention, Health Promotion, Caregivers
McKenzie, Karen; Armitage, Bethan; Murray, George; James, Ian – Journal of Applied Research in Intellectual Disabilities, 2021
Background: Therapeutic untruths (TU) are used in dementia services to de-escalate distressing situations. The present authors explored the use of TU by care staff supporting people with an intellectual disability who displayed behaviours that challenged. Method: Data were collected from 126 staff (female = 72.2%; mean age = 41.9 years, SD = 10.7)…
Descriptors: Stress Management, Dementia, Intellectual Disability, Behavior Problems
Andrea Almas; Rosemary Lysaght; Susan Farrell; Lorrie Heffernan – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Engagement of individuals with an intellectual disability and their caregivers in health care has been highlighted as an essential factor in developing services that better meet client needs; however, few studies have focused on the engagement of individuals with a dual diagnosis (intellectual disability co-occurring with a mental…
Descriptors: Intellectual Disability, Caregivers, Health Services, Comorbidity
J. Jordan; M. Larkin; E. Tilley; J. Vseteckova; S. Ryan; L. Wallace – Journal of Applied Research in Intellectual Disabilities, 2025
Background: There are increasing numbers of ageing family carers of older (40+) adults with intellectual disabilities who convey behaviours that challenge others in the UK. It is important to understand the needs and experiences of these carers as they support their older family member to transition to different care contexts. Method: A rapid…
Descriptors: Foreign Countries, Literature Reviews, Caregivers, Older Adults
Olivier-Pijpers, Vanessa Charissa; Cramm, Jane Murray; Landman, Wouter; Nieboer, Anna Petra – Journal of Applied Research in Intellectual Disabilities, 2021
Background: The present authors examined changes made in disability service organizations supporting residents with intellectual disabilities and challenging behaviours, because these changes may influence residents' support and subsequently their challenging behaviours. Method: In this multiple case study, the present authors collected and…
Descriptors: Intellectual Disability, Behavior Problems, Organizational Change, Foreign Countries
Kouroupa, Athanasia; Hassiotis, Angela; Hamza, Leila; Courtenay, Ken; Hall, Ian; Langdon, Peter E.; Taggart, Laurence; Crossey, Vicky; Lloyd-Evans, Brynmor; Morant, Nicola – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Adults with intellectual disabilities often display behaviour that challenges that is a result of biological differences, psychological challenges, and lack of appropriate social support. Intensive Support Teams (IST) are recommended to support the care needs of this group and avoid hospitalisation. However, little attention has been…
Descriptors: Adults, Intellectual Disability, Behavior Problems, Foreign Countries
Eke Bruinsma; Annelies A. de Bildt; Pieter J. Hoekstra; Gerda M. de Kuijper; Barbara J. van den Hoofdakker – Journal of Applied Research in Intellectual Disabilities, 2025
Background: We aimed to identify key factors in implementing and adhering to positive behaviour support (PBS), provided by frontline staff, targeting challenging behaviours of people with intellectual disabilities living in residential group homes. Method: Using semi-structured interviews with 12 frontline staff members, we collected perspectives…
Descriptors: Positive Behavior Supports, Behavior Problems, Intellectual Disability, Group Homes
Bruinsma, Eke; van den Hoofdakker, Barbara J.; Hoekstra, Pieter J.; de Kuijper, Gerda M.; de Bildt, Annelies A. – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Effects of staff provided positive behaviour support (PBS) for individuals with intellectual disabilities are unclear. Method: Using a multicentre non-randomised cluster controlled design, 26 teams of residential group homes, including 245 staff members of 167 individuals with intellectual disabilities, were allocated to a PBS or…
Descriptors: Adults, Intellectual Disability, Positive Behavior Supports, Allied Health Personnel
Simons, M. A. G.; Koordeman, R.; Willems, A. P. A. M.; Hermsen, M.; Rooijackers, L. M.; Otten, R. – Journal of Applied Research in Intellectual Disabilities, 2021
Background: Interactions with professional caregivers affect the quality of support and life of people with intellectual disabilities and contribute to the occurrence of challenging behaviour. The present literature review provides an overview of factors facilitating or hindering meaningful staff-client interactions in people with borderline to…
Descriptors: Caregivers, Intellectual Disability, Behavior Problems, Interpersonal Relationship
Bruinsma, Eke; van den Hoofdakker, Barbara J.; Hoekstra, Pieter J.; de Kuijper, Gerda M.; de Bildt, Annelies A. – Journal of Applied Research in Intellectual Disabilities, 2022
Background: This study aimed to examine the associations between individual staff and staff team characteristics and quality of life of individuals with intellectual disabilities and challenging behaviours. Method: With multilevel analyses, we examined educational level, experience, attitudes and behaviours of 240 staff members, in relation to…
Descriptors: Quality of Life, Individual Characteristics, Correlation, Intellectual Disability
de Kuijper, Gerda M.; Den Besten-van Ravenswaaij, Janneke J. C.; Hoekstra, Pieter J.; de Bildt, Annelies – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Interventions for challenging behaviours in individuals with intellectual disabilities benefit from outcome monitoring that takes clients' preferences into account. We determined clients' and representatives' preferred outcome domains and measures to secure their involvement in treatment decisions for challenging behaviours. Method: We…
Descriptors: Behavior Problems, Intellectual Disability, Outcomes of Treatment, Intervention
Tilley, Elizabeth; Jordan, Joanne; Larkin, Mary; Vseteckova, Jitka; Ryan, Sara; Wallace, Louise – Journal of Applied Research in Intellectual Disabilities, 2023
Background: People with intellectual disabilities and behaviours that challenge others are living longer. This review aimed to explore what is known about the health and social care needs, experiences, service interventions and resources of and for this population as they transition to different care contexts in the UK. Method: A rapid scoping…
Descriptors: Foreign Countries, Older Adults, Intellectual Disability, Behavior Problems
Kuijper, Gerda M.; Hoekstra, Pieter J. – Journal of Applied Research in Intellectual Disabilities, 2019
Background: Results of discontinuation of antipsychotics in people with intellectual disability are variable and may depend on staff factors. Method: We attempted to taper off antipsychotics in 14 weeks after which participants were free to restart. We investigated the influence of support professionals' feelings towards challenging behaviour,…
Descriptors: Intellectual Disability, Drug Therapy, Behavior Problems, Depression (Psychology)
Shankar, Rohit; Wilcock, Mike; Deb, Shoumitro; Goodey, Rebecca; Corson, Eve; Pretorius, Charlotte; Praed, Georgina; Pell, Amanda; Vujkovic, Dee; Wilkinson, Ellen; Laugharne, Richard; Axby, Sharon; Sheehan, Rory; Alexander, Regi – Journal of Applied Research in Intellectual Disabilities, 2019
Background: Antipsychotic medications are used among 19%--58% of adults with intellectual disabilities to manage challenging behaviour against the NICE guideline recommendations. Studies show that it is possible to completely withdraw antipsychotics in about one third of adults with intellectual disabilities and a dose reduction of 50% or more in…
Descriptors: Drug Therapy, Adults, Intellectual Disability, Behavior Modification
McCausland, Darren; McCallion, Philip; Carroll, Rachael; McCarron, Mary – Journal of Applied Research in Intellectual Disabilities, 2021
Background: Friendship is important to quality of life, yet people with intellectual disability have more restricted social networks and fewer friends outside family and support staff. Method: Data from a nationally representative longitudinal study of older adults with intellectual disability (aged >40) examined rates and types of friends.…
Descriptors: Friendship, Quality of Life, Intellectual Disability, Older Adults
