Purpose: To explore caregiver perceptions of the socio-environmental issues around evening meal ("teatime") which influence choking. Methodology: A qualitative study of caregivers witnessing a choking incident was undertaken. Semi-structured interviews explored perceptions of the causes. Data were analysed using thematic analysis.…

Promoting community participation for people with intellectual disability through encounter with strangers is an integral part of the mission of disability support workers. This paper offers detailed micro-level analysis of the practices of support workers when they accompany a person with intellectual disability outside their home and explores…

Background: The aim of this study was to explore parents' experiences and strategies used when meeting the needs of all their children, including an adolescent with disabilities. Materials and methods: A qualitative study design was employed. The study was conducted in two phases. (i) Secondary analysis of ecocultural interviews with 12…

Background: Funding bodies in Australia and the United Kingdom require research on issues that affect the lives of people with intellectual disability to be inclusive. Debate continues about the nature and benefits of inclusive research, which has become an umbrella term encompassing a broad spectrum of approaches. Method: This study proposes one…

Background: Involving ID service users in risk decision making necessitates consideration of an individual's ability to assess the implications and associated risks and thus make an informed choice. This calls for research on service users' awareness and understanding of risk management (RM). Method: Thirteen people in a residential ID service who…

Background: This paper details the experiences of nine people with mild/moderate intellectual disability who self injure; looking beyond the clinical presentations in an attempt to capture the perceptions these people have of their care in a medium secure unit. Methods: A phenomenological approach was used, and during in-depth interviews, the…

Background: In recent years, community based therapy service providers have explored different service delivery models to optimize child and family outcomes. This qualitative study aimed to explore parents' experiences of one particular service team that adopted a strengths approach, utilizing natural learning environments. Materials and methods:…

Background: Specialist short break services aim to provide enhanced support to family carers as a means of preventing children whose behaviours severely challenge from being placed in full-time residential care. To date, there is limited evidence as to the functioning and effectiveness of such services. Methods: In all, 17 children were selected…

Background: Care and service trajectories for people with intellectual disabilities are routes within the health care delivery system that consist of all the steps that people with intellectual disability and their families have to take in order to realize needed care and services. In contrast to the growing body of system-orientated knowledge…

Background: Government guidelines promote the use of mainstream mental health services for people with intellectual disabilities whenever possible. However, little is known about the experiences of people with intellectual disabilities who use such services. Materials and Methods: Face-to-face interviews with service users, carers and community…

Background: This study describes the development and trialling of the Family Life Interview (FLI), a clinical tool designed to examine sustainability of family routines. Materials and Methods: The FLI, a self-report instrument completed by a parent within a semi-structured practitioner--parent interview, was administered to 118 parents, with…

Background: Increasing numbers of adults with an intellectual disability are being cared for at home by ageing parents. The purpose of this study was to determine whether carer resources (i.e. social support and formal service use) and carer appraisals of ageing and stress/burden mediate the relationships between (1) maladaptive behaviour and…

Background: This study explored the relationship between family life variables and out-of-home placement tendency for families of school-age children with disabilities and high support needs. Method: This study was a prospective cohort study of 81 families with children with disabilities and high support needs aged between 6 and 13 years. There…