NotesFAQContact Us
Collection
Advanced
Search Tips
Showing all 4 results Save | Export
Development of an Online Training Course for Government Employees to Support Families with a Child with Profound Intellectual and Multiple Disabilities
Peer reviewed Peer reviewed
Direct linkDirect link
Siméon T. A. Lahaije; Jorien Luijkx; Aly Waninge; Annette A. J. van der Putten – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Families with a child with profound intellectual and multiple disabilities have to manage the pervasive support needs of their child, which is a complex task. By properly supporting them, we can ensure these families live a positive and meaningful life. Method: A product to support these families was developed using the method of…
Descriptors: Curriculum Development, Online Courses, Training, Government Employees
"What if I'm No Longer Around?": An Evaluative Description of a Structured Group Conversation about the Care for Persons with Profound Intellectual and Multiple Disabilities When They Outlive Their Parents
Peer reviewed Peer reviewed
Direct linkDirect link
Kasper Kruithof; Erik Olsman; Dick Willems; Karin Volkers; Bas Kleijwegt; Appolonia Nieuwenhuijse – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Persons with profound intellectual and multiple disabilities (PIMD) increasingly outlive their parents. Therefore, we designed a structured group conversation to support family members and care professionals in exploring together how parental roles may be taken over by others when necessary. Method: We conducted a mixed methods study,…
Descriptors: Severe Intellectual Disability, Multiple Disabilities, Family Needs, Parent Role
Community Participation of Families of Children with Profound Intellectual and Multiple Disabilities in South Africa
Peer reviewed Peer reviewed
Direct linkDirect link
McKenzie, Judith Anne; Kahonde, Callista; Mostert, Karen; Aldersey, Heather Michelle – Journal of Applied Research in Intellectual Disabilities, 2021
Background: Families struggle to support family members with profound intellectual and multiple disabilities (PIMD), especially in low resourced settings where formal services may not be available. Method: The adapted Family Community Participation survey, measuring perceptions of community participation, was administered to 67 primary caregivers…
Descriptors: Family Involvement, Family Needs, Community Services, Child Caregivers
The Role of the External Personal Assistants for Children with Profound Intellectual and Multiple Disabilities Working in the Children's Home
Peer reviewed Peer reviewed
Direct linkDirect link
Axelsson, Anna Karin – Journal of Applied Research in Intellectual Disabilities, 2015
Background: Children with profound intellectual and multiple disabilities need support to function in an optimal way. However, there is a limited knowledge about the role of external personal assistants working in the children's home. Materials and Methods: A mixed method study was performed including qualitative data from interviews with 11…
Descriptors: Severe Mental Retardation, Severe Disabilities, Multiple Disabilities, Mixed Methods Research