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Thackeray, Lisa A.; Eatough, Virginia – Journal of Applied Research in Intellectual Disabilities, 2015
Background: The predominant focus of extant literature exploring maternal experience of developmental disability has been stress, adaptation, efficacy of interventions and the burden of care. Most studies involve mothers of children, with scant attention given to what life is like later. This study qualitatively explores the experience of mothers…
Descriptors: Hermeneutics, Phenomenology, Trust (Psychology), Semi Structured Interviews
Tuffrey-Wijne, Irene; Giatras, Nikoletta; Butler, Gary; Cresswell, Amanda; Manners, Paula; Bernal, Jane – Journal of Applied Research in Intellectual Disabilities, 2013
Background: There is insufficient evidence to guide decisions around (non-)disclosure of bad news of life-limiting illness and death to people with intellectual disabilities. Aim: The aim of this study was to develop guidelines for decisions about (non-)disclosure of bad news around life-limiting illness and death to people with intellectual…
Descriptors: Guidelines, Disclosure, Diseases, Death
Donner, Ben; Mutter, Robin; Scior, Katrina – Journal of Applied Research in Intellectual Disabilities, 2010
Background: Government guidelines promote the use of mainstream mental health services for people with intellectual disabilities whenever possible. However, little is known about the experiences of people with intellectual disabilities who use such services. Materials and Methods: Face-to-face interviews with service users, carers and community…
Descriptors: Health Services, Mental Retardation, Nurses, Mental Health Programs