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Direct linkMaguire, Stephanie; Davison, Jenny; McLaughlin, Marian; Simms, Victoria; Bunting, Brendan – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Studies that have systematically reviewed the psychometric properties of health-related quality of life (HRQoL) and subjective wellbeing instruments for adolescents with intellectual disabilities narrowly focus on disease or health-specific conditions. This review aimed to critically appraise the psychometric properties of self-report…
Descriptors: Psychometrics, Measurement Techniques, Quality of Life, Well Being
Lauren Schwartz; Caroline J. Vrana-Diaz; Jessica E. Bohonowych; Lisa Matesevac; Theresa V. Strong – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Prader-Willi syndrome (PWS) is a rare neurodevelopmental disorder with symptoms that impact health and quality of life (QOL). There is limited data on global health, QOL and the relationship with mood in individuals with PWS. Methods: Parents completed three validated assessments, the Glasgow Depression Scale-Carer Supplement (GDS-CS),…
Descriptors: Life Satisfaction, Health, Psychological Patterns, Genetic Disorders
Harper, Lynette; McAnelly, Su; Walshe, Ian; Ooms, Ann; Tuffrey-Wijne, Irene M. – Journal of Applied Research in Intellectual Disabilities, 2023
Background: People with intellectual disabilities are more likely to experience sleep problems, which can affect quality of life, physical health, mental health and well-being. Methods: An integrative literature review was conducted to investigate what is known about behavioural sleep disturbances in people with an intellectual disability. The…
Descriptors: Intellectual Disability, Sleep, Quality of Life, Health
Friedman, Carli – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Research indicates Black, Indigenous, people of colour (BIPOC) with intellectual and developmental disabilities face disparities in quality of life outcomes. This study's aim was to examine how ableism and racism impacted the quality of life of BIPOC with intellectual and developmental disabilities. Methods: Using a multilevel linear…
Descriptors: Social Bias, Racism, Quality of Life, African Americans
Pett, Marjorie A.; Guo, Jia-Wen; Cardell, Beth; Johnson, Erin P.; Guerra, Nichole; Clark, Lauren – Journal of Applied Research in Intellectual Disabilities, 2021
Background: To encourage self-determination and address health disparities among persons with intellectual and developmental disabilities, clinicians and researchers rely on self-reported measures like health-related quality of life (HRQoL). This study evaluated the psychometric properties of a theory-driven self-reported HRQoL measure for adults…
Descriptors: Health, Quality of Life, Intellectual Disability, Developmental Disabilities
Bowring, Darren L.; Totsika, Vasiliki; Hastings, Richard P.; Toogood, Sandy – Journal of Applied Research in Intellectual Disabilities, 2020
Background: Previous evaluations of community PBS teams have not investigated whether behaviour change is both statistically reliable and clinically significant. Few previous studies have reported quality of life (QoL) and social validity outcomes. Method: The present authors collected data on 85 people referred to a specialist PBS team. The…
Descriptors: Developmental Disabilities, Behavior Change, Behavior Problems, Positive Behavior Supports
Szumski, Grzegorz; Firkowska-Mankiewicz, Anna; Lebuda, Izabela; Karwowski, Maciej – Journal of Applied Research in Intellectual Disabilities, 2018
Background: This longitudinal study examines the extent to which personal factors (intelligence and health status), social resources (family socioeconomic status, SES), special school placement and being labelled as a pupil with a disability in childhood predict subjective quality of life and objective life success 23 years later. Materials and…
Descriptors: Success, Quality of Life, Slow Learners, Socioeconomic Status
Chou, Yueh-Ching; Lin, Li-Chan; Chang, Ai-Ling; Schalock, Robert L. – Journal of Applied Research in Intellectual Disabilities, 2007
Background: Taiwanese family carers of people with intellectual disabilities not only suffer from long-term stress but also need to cope with social difficulties. The aim of this study is to evaluate the quality of life (QOL) among family carers of people with intellectual disabilities. Materials and methods: A census interview survey was…
Descriptors: Family Income, Mental Retardation, Health Conditions, Quality of Life
